Wow, I didn't realize it had been that long since I last updated! Okay, the Making Strides Against Breast Cancer walk on my birthday turned out to be a beautiful day! We had 12 walkers on our team, including my boys. You can check out a team picture at http://main.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY09Midwest?JServSessionIdr001=0ipaenq0y1.app311b&team_id=341437&pg=team&fr_id=11701. Our team "ranked" 7th out of all the Twin Cities teams involved. THANKS again so much for the generous donations! Let's hope & pray that the $ raised will help make a difference. I've been invited to be part of the ACS "team" next year (because I'm a team captain & I emailed several questions!) - I'm still considering that offer. I need to make sure I don't take on more than I can handle, and keep the priorities in order as much as possible.
I have met with Dr. Bellairs, the radiation oncologist. All looked good from her view, so I'll see her again after the MRI, which will be scheduled in just under 5 months. I'll see Dr. Hartung again in early December. I still need to schedule a check-up with Dr. Koeplin (surgeon) and just keep moving along.
I had a great follow-up appointment with Heidi Ganzer, the nutritionist @ MOHPA. She said she is one of only 75 oncology-specific registered nutritionists in the nation! That is unbelievable. I feel very fortunate that she is here & available to me. We have "upped" the Vitamin D intake through additional supplementation and talked through many nutritional topics. She is such a wealth of information & tremendously positive. I would highly recommend a nutritionist to anyone wanting to ensure they (their good cells!) are as healthy as possible when undergoing something like this. I certainly "slip" often enough, but in general am trying to maintain the new "habitual" good eating habits.
Work is very busy right now, so there was not much of an easing back in period! Better than having not enough to do, that's for sure. I am fortunate to work for a company with good benefits and flexibility to allow me to be off for as long as I was. I am certain that listening to my body (& chemo-brain mind) and laying low truly helped me to have the results that I did. That, along with mighty & effective prayer from all of you, and excellent medical treatment, of course, carried me through the journey to this "end" point (I don't think it's ever really "over/done" because it's on your mind every single day).
My "little" boys turned 10 and 8 in the last 4 days! That, also, is amazing to me. It seems like they were just little toddlers! I still have a few old voice messages from them on my work voice mail system that cycle through every 14 days. I get to hear those sweet little voices and be really careful to not delete them! :O)
I will sign off for now, but just wanted to put forth a quick update. I cherish your positive thoughts and prayers so much! Have a beautiful upcoming holiday season, starting with Thanksgiving. Every day (minute, second) is a perfect day to give thanks to God our Creator, without Whom nothing is accomplished, but with Whom all things are possible!
Monday, November 10, 2008
Sunday, October 5, 2008
Down the path
Just stopping in for a brief update. I had my mammogram @ lunch on Friday with "normal" results (except for scar tissue). This is good, but not really too meaningful to me, since nothing showed up any other time on a mammogram. MRI in 6 months. I did get a call back on Wednesday that my blood work was all good. The CA27.29 (breast cancer specific indicator) was 18. It needs to be under 37, so they said that was very good (had been 26+ range in 2 previous tests, March & August, the results of which I not seen before).
The other thing that I've discovered recently (and mentioned in the previous posting) is the significance of "triple-negative," which my results were. I've learned that there is even a specific foundation to support research in finding targeted therapies for this particular sub-category of breast cancers (TNBC). Reading through some of the website http://www.tnbcfoundation.org/index.html caused me to feel pretty "down" last night. It is more aggressive and likely to recur than other subgroups, but it does respond well to chemotherapy.
I guess learning this information now was better than all during treatment (or before), because I think I would have experienced more anxiety than I did. After facing & digesting it more, I've become more determined to continue with all the healthy changes I've made, and perhaps even increase some of them. And there is a point where I have to trust God (pretty much ALL the time!) and not my own efforts or those of the medical profession. He knows what I think and feel before I tell Him. I think I'll be bending His ear quite a bit....
Church was a blessing today! We've had 4 weeks of "Family Quest" which meant more time with the kids & less time in the "big church" hearing the message. I've missed it!
Mike and I also went to the new movie, "Fireproof" starring Kirk Cameron. http://www.fireproofthemovie.com/ It is a Christian movie made by the same church that created "Facing the Giants." The CG Fire Dept gave all the volunteer firefighters 2 free tickets. I thought it was excellent! It was all about saving a marriage and making Christ the center and strength of it. I, of course, was crying throughout, as I do at touching scenes! But that was a good thing! :O) The boys hung out with Grandma and Aunt Colleen & Jessica and made a trip to the apple orchard. We've been eating a lot of apples! Hope they keep the doctor away! Or us away from the doctor, rather!
It's time to shut down for the evening. Just wanted to keep everyone up to date. Less than a week until the Making Strides Against Breast Cancer Walk. Right now, the forecast is rain, a washout. Hope the weather forecasters are wrong! But that never happens! :O)
Have a fantastic week & I'll report back with results from the walk! I love you all! You are huge blessings in my life & the life of my family! "A sweet friendship refreshes the soul." Proverbs 27:9
The other thing that I've discovered recently (and mentioned in the previous posting) is the significance of "triple-negative," which my results were. I've learned that there is even a specific foundation to support research in finding targeted therapies for this particular sub-category of breast cancers (TNBC). Reading through some of the website http://www.tnbcfoundation.org/index.html caused me to feel pretty "down" last night. It is more aggressive and likely to recur than other subgroups, but it does respond well to chemotherapy.
I guess learning this information now was better than all during treatment (or before), because I think I would have experienced more anxiety than I did. After facing & digesting it more, I've become more determined to continue with all the healthy changes I've made, and perhaps even increase some of them. And there is a point where I have to trust God (pretty much ALL the time!) and not my own efforts or those of the medical profession. He knows what I think and feel before I tell Him. I think I'll be bending His ear quite a bit....
Church was a blessing today! We've had 4 weeks of "Family Quest" which meant more time with the kids & less time in the "big church" hearing the message. I've missed it!
Mike and I also went to the new movie, "Fireproof" starring Kirk Cameron. http://www.fireproofthemovie.com/ It is a Christian movie made by the same church that created "Facing the Giants." The CG Fire Dept gave all the volunteer firefighters 2 free tickets. I thought it was excellent! It was all about saving a marriage and making Christ the center and strength of it. I, of course, was crying throughout, as I do at touching scenes! But that was a good thing! :O) The boys hung out with Grandma and Aunt Colleen & Jessica and made a trip to the apple orchard. We've been eating a lot of apples! Hope they keep the doctor away! Or us away from the doctor, rather!
It's time to shut down for the evening. Just wanted to keep everyone up to date. Less than a week until the Making Strides Against Breast Cancer Walk. Right now, the forecast is rain, a washout. Hope the weather forecasters are wrong! But that never happens! :O)
Have a fantastic week & I'll report back with results from the walk! I love you all! You are huge blessings in my life & the life of my family! "A sweet friendship refreshes the soul." Proverbs 27:9
Monday, September 29, 2008
A new season
It's me, cancer-free, and checking back in! It's been awhile, and so here's what's been going on:
My "all-clear" check-up was last Thursday, the 25th. I'm still waiting for the final blood work results - they were going to mailed to me on Friday if all was well, or I'd get a call today from Dr. Hartung if anything was amiss. So far, I've seen/heard neither! However, I did ask her if I could say I am "free of cancer." She said YES, I've been free of cancer since the surgery, and all this is to remove any microscopic cells remaining, and help prevent recurrence. I am scheduled for a mammogram this Friday, I'll meet with Dr. Hartung every 3 months, and then I'll have an MRI in 6 months. I'll also have a follow-up appointment with Dr. Koeplin. I'm to notice and report any strange symptoms all throughout.
I have recently read in several articles (one while waiting for my free pedicure at the Aveda Salon 2000 in Woodbury - part of their wonderful Pampering Partnership for women undergoing chemotherapy/cancer treatment) that the triple negative ER/PR/HER2 type of cancer is more likely to recur. I hadn't really heard that before, but then I read it in several places. I asked about this, and the answer is that because it's not Estrogen receptor positive, it would not respond to any of the oral medications that are prescribed for 5 or so years after the other treatments. So, keep the prayers coming on that one, please!
I had a fun evening out with some great friends and fellow cub-scout moms, with a couple of surprise long-time friend guests as well, last Friday. Since life is short & every day is a gift, I'm doing my best to plan some fun things and spend some time with positive, encouraging people!
I've been back at work full-time since the 15th. That has been going pretty well, especially with a few new additional responsibilities to keep me busy (understatement!). I'm very thankful for my job as well, as there have been some painful job eliminations recently. It's always good to continue to grow & learn & develop yourself! Maybe some training or classes would be a good idea. My friend Kim suggested we take the Salsa dance lessons coming up in Community Ed! I'd count that as exercise, right? :O)
My fabulous friend, Jenny, and I have decided to co-captain a 3M team (also non-3M members) for the Making Strides Against Breast Cancer walk around Lake Nokomis on October 11 (which very appropriately, is also my birthday - more reason to celebrate this year & every one after!). We've already sent out emails to many of you asking you to walk with us if that day works! The ACS encourages each walker to raise $100 in donations, but there is no minimum at all. I feel sort of guilty asking for donations after all the help that's already been so generously poured out to me, so please don't feel obligated in any way! It's a great cause that effects many more than the 1 out of 8 women that are diagnosed with breast cancer in their lives - sons, daughters, mothers, spouses, friends, etc. Here's the link to our team page: http://main.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY09Midwest?JServSessionIdr001=y6g9uxssc2.app311b&team_id=341437&pg=team&fr_id=11701
You've probably noticed it's breast cancer awareness month - PINK is everywhere!
Mike and I joined many others for the annual 3M Service Awards Banquet @ the Mpls Convention Center on the 20th. It was 20 years for me on June 15th. Wow! The dinner was very good and the entertainment, Super Diamond, was excellent, too! Even the dance floor was packed (not by us, however!). A nice evening. And thanks to Grandma, Aunt Colleen, and Jessica for hanging out with the boys! :O)
Alec and I were out shopping one rainy day & with amazing luck found & purchased a WII FIT. We've since been "working out" so to speak! We've practiced many of the balance games, which are particularly good for me with the continuing neuropathy in my feet. It's much better than sitting on the couch (not that there is much time for that, either!).
Kevin & I ventured to Afton Apple Orchard yesterday & braved the minor drizzle to pick a big bag of tart Haralson apples. Also HAD to get a big bag of Honeycrisp, our favorite. We also managed to find & pick 3 pints of red and golden raspberries. The golden ones always remind me of my grandma, who grew red, black, and golden raspberries in her enormous garden. Talk about the benefits of a basically organic garden! We didn't know how blessed we were with all that fresh produce!
Evenings are often filled with helping Alec & Kevin with homework. Kevin thinks it's quite unfair that he as a 2nd grader virtually always has more homework than his 4th grade brother! We are currently working on a diorama of a Magic Tree House book due next Monday. They are both doing well and enjoying seeing old friends and making new ones. They are also busy with scouting activities.
I'm still fighting fatigue, so I'll conclude (it's really 9:53 p.m. right now, not whatever time it says I posted). Again, thanks to you all for following along on this journey & encouraging me every step of the way. I'm so thankful for all the support shown to my boys, also, which has made this easier for me, allowed them to feel more "normal" than they would have otherwise. Please keep in touch! God bless and remember this is the day the Lord has made, let us rejoice & be glad in it! We are not promised tomorrow, so let's spread His light today!
My "all-clear" check-up was last Thursday, the 25th. I'm still waiting for the final blood work results - they were going to mailed to me on Friday if all was well, or I'd get a call today from Dr. Hartung if anything was amiss. So far, I've seen/heard neither! However, I did ask her if I could say I am "free of cancer." She said YES, I've been free of cancer since the surgery, and all this is to remove any microscopic cells remaining, and help prevent recurrence. I am scheduled for a mammogram this Friday, I'll meet with Dr. Hartung every 3 months, and then I'll have an MRI in 6 months. I'll also have a follow-up appointment with Dr. Koeplin. I'm to notice and report any strange symptoms all throughout.
I have recently read in several articles (one while waiting for my free pedicure at the Aveda Salon 2000 in Woodbury - part of their wonderful Pampering Partnership for women undergoing chemotherapy/cancer treatment) that the triple negative ER/PR/HER2 type of cancer is more likely to recur. I hadn't really heard that before, but then I read it in several places. I asked about this, and the answer is that because it's not Estrogen receptor positive, it would not respond to any of the oral medications that are prescribed for 5 or so years after the other treatments. So, keep the prayers coming on that one, please!
I had a fun evening out with some great friends and fellow cub-scout moms, with a couple of surprise long-time friend guests as well, last Friday. Since life is short & every day is a gift, I'm doing my best to plan some fun things and spend some time with positive, encouraging people!
I've been back at work full-time since the 15th. That has been going pretty well, especially with a few new additional responsibilities to keep me busy (understatement!). I'm very thankful for my job as well, as there have been some painful job eliminations recently. It's always good to continue to grow & learn & develop yourself! Maybe some training or classes would be a good idea. My friend Kim suggested we take the Salsa dance lessons coming up in Community Ed! I'd count that as exercise, right? :O)
My fabulous friend, Jenny, and I have decided to co-captain a 3M team (also non-3M members) for the Making Strides Against Breast Cancer walk around Lake Nokomis on October 11 (which very appropriately, is also my birthday - more reason to celebrate this year & every one after!). We've already sent out emails to many of you asking you to walk with us if that day works! The ACS encourages each walker to raise $100 in donations, but there is no minimum at all. I feel sort of guilty asking for donations after all the help that's already been so generously poured out to me, so please don't feel obligated in any way! It's a great cause that effects many more than the 1 out of 8 women that are diagnosed with breast cancer in their lives - sons, daughters, mothers, spouses, friends, etc. Here's the link to our team page: http://main.acsevents.org/site/TR/MakingStridesAgainstBreastCancer/MSABCFY09Midwest?JServSessionIdr001=y6g9uxssc2.app311b&team_id=341437&pg=team&fr_id=11701
You've probably noticed it's breast cancer awareness month - PINK is everywhere!
Mike and I joined many others for the annual 3M Service Awards Banquet @ the Mpls Convention Center on the 20th. It was 20 years for me on June 15th. Wow! The dinner was very good and the entertainment, Super Diamond, was excellent, too! Even the dance floor was packed (not by us, however!). A nice evening. And thanks to Grandma, Aunt Colleen, and Jessica for hanging out with the boys! :O)
Alec and I were out shopping one rainy day & with amazing luck found & purchased a WII FIT. We've since been "working out" so to speak! We've practiced many of the balance games, which are particularly good for me with the continuing neuropathy in my feet. It's much better than sitting on the couch (not that there is much time for that, either!).
Kevin & I ventured to Afton Apple Orchard yesterday & braved the minor drizzle to pick a big bag of tart Haralson apples. Also HAD to get a big bag of Honeycrisp, our favorite. We also managed to find & pick 3 pints of red and golden raspberries. The golden ones always remind me of my grandma, who grew red, black, and golden raspberries in her enormous garden. Talk about the benefits of a basically organic garden! We didn't know how blessed we were with all that fresh produce!
Evenings are often filled with helping Alec & Kevin with homework. Kevin thinks it's quite unfair that he as a 2nd grader virtually always has more homework than his 4th grade brother! We are currently working on a diorama of a Magic Tree House book due next Monday. They are both doing well and enjoying seeing old friends and making new ones. They are also busy with scouting activities.
I'm still fighting fatigue, so I'll conclude (it's really 9:53 p.m. right now, not whatever time it says I posted). Again, thanks to you all for following along on this journey & encouraging me every step of the way. I'm so thankful for all the support shown to my boys, also, which has made this easier for me, allowed them to feel more "normal" than they would have otherwise. Please keep in touch! God bless and remember this is the day the Lord has made, let us rejoice & be glad in it! We are not promised tomorrow, so let's spread His light today!
Sunday, September 7, 2008
Onward and Upward...
Onward...yes, treatment is complete - the final radiation went smoothly on August 26th - and so now is the time to recover & regrow! What a milestone!! It was somewhat anticlimactic that day. I got the same few minutes of radiation and then got up and left. I was awarded an Angel Foundation mug and a "graduation" print-out, which was very thoughtful. The radiation team was great and always upbeat - I'm thankful for them.
I would say, however, that the effects of the treatments have not fully disappeared. I do have a minor, but persistent rash now, from the radiation (my really good cream with calendula ran out right after the last treatment). I also am dealing with continuing neuropathy in my feet and hands (from the chemo). This is causing me to lose sleep more than I'd like, lately. Waking up with numb fingers also makes it a challenge to turn off the alarm clock! The hot flashes are still a daily occurrence as well, which also contributes to the lack of sleep. So, on top of the fatigue brought on by the radiation, I'm just plain tired!
I will be working in the office part time again this week, with the intent of returning to full time next week. Because of the exhaustion, I'm falling behind on my exercise and other healing practices, so I'm still needing to figure out how to make those a permanent part of the daily schedule (without getting back on the 4:30 a.m. bandwagon immediately, or ever, hopefully!).
Upward...the hair on my head is now maybe 1/2 an inch long! I'm thinking there are a few more grays sneaking in there than previously. Well, hair is hair...I'll still take it! I'm using Nioxin shampoo which was recommended by the American Cancer Society and also a stylist friend. I'm encouraging it to GROW!
Alec and Kevin have completed their first week back at school - major family adjustment! They both have great teachers which are going to provide them with lots of fun and academic challenges this year. The first Scholastic book order form has even arrived (LOVE those!) and school pictures are this coming week already. Now if we can keep them from bonking their heads on something prior to the pictures and getting a black eye or bruised goose egg, we'll be in good shape.
I am continuing my yoga classes on Wednesday evenings, and have a goal of getting back to the fitness center at work for at least 30 minutes as "daily" as possible. Also, a friend just gifted me with a massage, so I have that to look forward to, as well! Haven't had much reading time or crocheting time or even sunning on the deck for 15 minutes time (starting to get a little chilly for that - my "winter wimpy" status is returning). I try to squeeze some of those things in while riding in the car.
My next appointment with my oncologist, Dr. Hartung, is September 25th. I won't meet with Dr. Bellairs, my radiation oncologist, again until November 4th. Following these "all clear" appointments, I'll start a 3-month routine of check-ups, then eventually 6 months, a year, etc. They will alternate mammograms with MRIs every 6 months. I believe I'll be meeting with the surgeon, Dr. Koeplin, again at some point as well. I'm feeling pretty confident that all the cancer is gone. There really won't be any scans or additional tests (beyond blood work) unless I have a symptom of some sort.
I must say I'm very thankful I didn't wait until my next scheduled mammogram to get this lump checked out! I'd be starting all this about now, and who knows how far things would have spread (recall it was typed as Stage 1 - Grade 3 - fastest growing) by this time. I've read lately in the paper how now the idea is to discourage self-exams, with reasoning that it causes unnecessary biopsies. I would have to disagree! Even if the results of a biopsy are negative, I think it is a necessary test, to restore a woman's peace of mind.
Because this whole episode is not quite complete, I will probably continue to write updates to this blog (plus, you've figured out by now that I enjoy writing). I sincerely cannot tell you all how grateful I am for your wonderful ongoing support and care. As I've said before, I've never felt so beat up and so cared for at the same time. From old friends to newer friends to relatives far and near to even strangers, the prayers have continued to flow up to our Heavenly Father with healing results. He is awesome and so adores every single one of us. It is amazing to consider that the Creator of the Universe "is especially fond of" each of us, as if we were the only person alive. I know this experience has caused me to want to walk closer with Him every day. It's not always easy, and I don't always "feel" like it, but I know in my head and my heart that it is the only way to not only survive, but thrive. My goal for the remainder of the year, and the remainder of my life, is to do just that - thrive! And use the talents and gifts that He has given me for His purposes. It's time to get started.....
I would say, however, that the effects of the treatments have not fully disappeared. I do have a minor, but persistent rash now, from the radiation (my really good cream with calendula ran out right after the last treatment). I also am dealing with continuing neuropathy in my feet and hands (from the chemo). This is causing me to lose sleep more than I'd like, lately. Waking up with numb fingers also makes it a challenge to turn off the alarm clock! The hot flashes are still a daily occurrence as well, which also contributes to the lack of sleep. So, on top of the fatigue brought on by the radiation, I'm just plain tired!
I will be working in the office part time again this week, with the intent of returning to full time next week. Because of the exhaustion, I'm falling behind on my exercise and other healing practices, so I'm still needing to figure out how to make those a permanent part of the daily schedule (without getting back on the 4:30 a.m. bandwagon immediately, or ever, hopefully!).
Upward...the hair on my head is now maybe 1/2 an inch long! I'm thinking there are a few more grays sneaking in there than previously. Well, hair is hair...I'll still take it! I'm using Nioxin shampoo which was recommended by the American Cancer Society and also a stylist friend. I'm encouraging it to GROW!
Alec and Kevin have completed their first week back at school - major family adjustment! They both have great teachers which are going to provide them with lots of fun and academic challenges this year. The first Scholastic book order form has even arrived (LOVE those!) and school pictures are this coming week already. Now if we can keep them from bonking their heads on something prior to the pictures and getting a black eye or bruised goose egg, we'll be in good shape.
I am continuing my yoga classes on Wednesday evenings, and have a goal of getting back to the fitness center at work for at least 30 minutes as "daily" as possible. Also, a friend just gifted me with a massage, so I have that to look forward to, as well! Haven't had much reading time or crocheting time or even sunning on the deck for 15 minutes time (starting to get a little chilly for that - my "winter wimpy" status is returning). I try to squeeze some of those things in while riding in the car.
My next appointment with my oncologist, Dr. Hartung, is September 25th. I won't meet with Dr. Bellairs, my radiation oncologist, again until November 4th. Following these "all clear" appointments, I'll start a 3-month routine of check-ups, then eventually 6 months, a year, etc. They will alternate mammograms with MRIs every 6 months. I believe I'll be meeting with the surgeon, Dr. Koeplin, again at some point as well. I'm feeling pretty confident that all the cancer is gone. There really won't be any scans or additional tests (beyond blood work) unless I have a symptom of some sort.
I must say I'm very thankful I didn't wait until my next scheduled mammogram to get this lump checked out! I'd be starting all this about now, and who knows how far things would have spread (recall it was typed as Stage 1 - Grade 3 - fastest growing) by this time. I've read lately in the paper how now the idea is to discourage self-exams, with reasoning that it causes unnecessary biopsies. I would have to disagree! Even if the results of a biopsy are negative, I think it is a necessary test, to restore a woman's peace of mind.
Because this whole episode is not quite complete, I will probably continue to write updates to this blog (plus, you've figured out by now that I enjoy writing). I sincerely cannot tell you all how grateful I am for your wonderful ongoing support and care. As I've said before, I've never felt so beat up and so cared for at the same time. From old friends to newer friends to relatives far and near to even strangers, the prayers have continued to flow up to our Heavenly Father with healing results. He is awesome and so adores every single one of us. It is amazing to consider that the Creator of the Universe "is especially fond of" each of us, as if we were the only person alive. I know this experience has caused me to want to walk closer with Him every day. It's not always easy, and I don't always "feel" like it, but I know in my head and my heart that it is the only way to not only survive, but thrive. My goal for the remainder of the year, and the remainder of my life, is to do just that - thrive! And use the talents and gifts that He has given me for His purposes. It's time to get started.....
Tuesday, August 19, 2008
More than midway
Today I completed #11 out of 16 radiation treatments, plus had a second X-ray to make sure they are on target. So far, so good. This is a much less "invasive" therapy than the chemo. So far the side effects are a little bit tender skin and moderate fatigue. The end is in close range...
Okay, so hair is growing in. Which makes wearing the wig/liner like putting a nylon on a stubbly hairy leg. Not the most comfortable thing in the world. When I leave my half+ day of work and head out to my car (usually race out, since I'm almost always close to being late for my appt.), I kind of look both ways & whip that thing off my head & quickly replace it with a nice sporty hat. Instead of hat head, I am experiencing wig head, which is a red line all around the edge of where that liner sits. Oh well, it could be worse! Oh, the wig also squeezes my glasses against my head, so my vision is not always right on, either.
We are gearing up for back to school & back to normal life sometime soon! The radiation oncologist and the nurse practitioner both recommend easing back into full time. So, continue with 1/2 days the first week in Sept, then 3/4 the next week, and then full time after that. I'll see Dr. Bellairs again on Thursday and she'll formalize that plan.
The boys are getting kind of "antsy" and I think they are ready to get back into the learning routine. And they'll enjoy seeing more of their friends, too (but probably not that "no talking" part of the classroom!). They are hoping for excellent teachers, but it will be difficult to equal or top last years!
We are also planning on the MN State Fair next week (starts this Thursday already!). We have tickets to the Mark Schultz concert. If you are not familiar with him, he's a great Christian singer/story-teller. Kevin loves his songs and sings along often ("He's My Son" and "Letters from War" are two well-known ones, yes, that tend to make me cry!).
Mike and I went out to dinner at Ristorante' Luci last Saturday evening while my mom watched the boys. This was to celebrate the end of chemo!! I had to wait until my taste buds were back in action. I even enjoyed my first glass of wine - a nice Chianti - since my diagnosis. It was very nice - not at all like turpentine (the dietitian warned me it could taste that way during chemo).
Mike just took a fire call, so I better to find out what those boys are up to outside! Since it was close to 90 degrees today, I think water may be involved!
Thanks again to everyone for the continued positive thoughts & prayers! You all have helped me to keep on moving to the light at the end of the tunnel, which is finally in view! Blessings to you today & every day! :O)
Okay, so hair is growing in. Which makes wearing the wig/liner like putting a nylon on a stubbly hairy leg. Not the most comfortable thing in the world. When I leave my half+ day of work and head out to my car (usually race out, since I'm almost always close to being late for my appt.), I kind of look both ways & whip that thing off my head & quickly replace it with a nice sporty hat. Instead of hat head, I am experiencing wig head, which is a red line all around the edge of where that liner sits. Oh well, it could be worse! Oh, the wig also squeezes my glasses against my head, so my vision is not always right on, either.
We are gearing up for back to school & back to normal life sometime soon! The radiation oncologist and the nurse practitioner both recommend easing back into full time. So, continue with 1/2 days the first week in Sept, then 3/4 the next week, and then full time after that. I'll see Dr. Bellairs again on Thursday and she'll formalize that plan.
The boys are getting kind of "antsy" and I think they are ready to get back into the learning routine. And they'll enjoy seeing more of their friends, too (but probably not that "no talking" part of the classroom!). They are hoping for excellent teachers, but it will be difficult to equal or top last years!
We are also planning on the MN State Fair next week (starts this Thursday already!). We have tickets to the Mark Schultz concert. If you are not familiar with him, he's a great Christian singer/story-teller. Kevin loves his songs and sings along often ("He's My Son" and "Letters from War" are two well-known ones, yes, that tend to make me cry!).
Mike and I went out to dinner at Ristorante' Luci last Saturday evening while my mom watched the boys. This was to celebrate the end of chemo!! I had to wait until my taste buds were back in action. I even enjoyed my first glass of wine - a nice Chianti - since my diagnosis. It was very nice - not at all like turpentine (the dietitian warned me it could taste that way during chemo).
Mike just took a fire call, so I better to find out what those boys are up to outside! Since it was close to 90 degrees today, I think water may be involved!
Thanks again to everyone for the continued positive thoughts & prayers! You all have helped me to keep on moving to the light at the end of the tunnel, which is finally in view! Blessings to you today & every day! :O)
Sunday, August 3, 2008
Final phase....
Just a quick update (do I ever actually do that - keep it quick?)...
I have my "dry run" radiation treatment tomorrow around noon. Then I start the real thing on Tuesday. As I mentioned previously, this course of treatment will run for 3 weeks and a day (Canadian protocol) with a 25% higher dose (vs the 6 week protocol). This radiation should seek and destroy any remaining microscopic cancer cells to help prevent recurrence.
The current plan is for me to work a half day, in the office, then go have my treatment and head home. Because the primary side effect is fatigue, I'll probably schedule an afternoon nap! Just writing about this brought on a hot flash! Funny how anything somewhat "stressful" brings on one of those little buggers! If all the components of the office part become too exhausting, I'll work those daily hours from home.
This last week was our annual family vacation. For a variety of reasons, we didn't make it to the Wisconsin Dells this year (sorry boys!). But, we did have a 3 day visit to the Duluth area at the Edgewater Waterpark Resort. We took in many sights including the Split Rock Lighthouse, the William A. Irvin retired cargo ship, the Vista Fleet harbor boat tour, Gooseberry Falls, and watched some HUGE barges come into the harbor. I'm talking 1004 feet long! Enormous! Overall, we had a good time. Ate at many nice restaurants - so nice not to cook and clean up! The boys liked the waterpark and the seagulls the best!
I will say that I was very surprised to find that my legs were not up for the Gooseberry Falls hiking (just walking, really)! Turned out I had far less energy than I thought, so "Mom" kind of slowed things down this time. I'm still dealing with quite a bit of neuropathy in my left foot, which doesn't help. I am hoping/praying that will resolve sooner than later. My hair is definitely starting to grow again, which is great news! :O)
One of my dear friends had a little gathering on Friday evening, and since all of my boys were at Cub Scout Camp this weekend, I was especially free to attend. It's such good medicine to just laugh and chat (and eat!)! I was, however, the BIG loser at Polish Poker! Oh well, someone had to fill that role!
I will close for now, with again, so much thankfulness for all of you! One more quick quote: "It's not how long you live that matters, but how you live." My goal is to live such that I will hear "Well done, good and faithful servant!" when I move onward and upward to my eventual heavenly home. There is so much to learn and experience - I thank so many of you for providing a great example of the kind of caring and compassion Jesus showed us! God bless!
I have my "dry run" radiation treatment tomorrow around noon. Then I start the real thing on Tuesday. As I mentioned previously, this course of treatment will run for 3 weeks and a day (Canadian protocol) with a 25% higher dose (vs the 6 week protocol). This radiation should seek and destroy any remaining microscopic cancer cells to help prevent recurrence.
The current plan is for me to work a half day, in the office, then go have my treatment and head home. Because the primary side effect is fatigue, I'll probably schedule an afternoon nap! Just writing about this brought on a hot flash! Funny how anything somewhat "stressful" brings on one of those little buggers! If all the components of the office part become too exhausting, I'll work those daily hours from home.
This last week was our annual family vacation. For a variety of reasons, we didn't make it to the Wisconsin Dells this year (sorry boys!). But, we did have a 3 day visit to the Duluth area at the Edgewater Waterpark Resort. We took in many sights including the Split Rock Lighthouse, the William A. Irvin retired cargo ship, the Vista Fleet harbor boat tour, Gooseberry Falls, and watched some HUGE barges come into the harbor. I'm talking 1004 feet long! Enormous! Overall, we had a good time. Ate at many nice restaurants - so nice not to cook and clean up! The boys liked the waterpark and the seagulls the best!
I will say that I was very surprised to find that my legs were not up for the Gooseberry Falls hiking (just walking, really)! Turned out I had far less energy than I thought, so "Mom" kind of slowed things down this time. I'm still dealing with quite a bit of neuropathy in my left foot, which doesn't help. I am hoping/praying that will resolve sooner than later. My hair is definitely starting to grow again, which is great news! :O)
One of my dear friends had a little gathering on Friday evening, and since all of my boys were at Cub Scout Camp this weekend, I was especially free to attend. It's such good medicine to just laugh and chat (and eat!)! I was, however, the BIG loser at Polish Poker! Oh well, someone had to fill that role!
I will close for now, with again, so much thankfulness for all of you! One more quick quote: "It's not how long you live that matters, but how you live." My goal is to live such that I will hear "Well done, good and faithful servant!" when I move onward and upward to my eventual heavenly home. There is so much to learn and experience - I thank so many of you for providing a great example of the kind of caring and compassion Jesus showed us! God bless!
Tuesday, July 22, 2008
Sloth...and more
Have you ever just felt like a muddle-headed sloth, sort of slogging one foot in front of the other the best you can? Eyes twitching constantly and not a lot of feeling in your legs or toes? Well, that's about how I feel today...and that's the honest truth! Not that I am in the practice of telling anything but the whole truth...just thought I'd share. It was surprising every time I stood up today - oh yeah, my limbs are not working properly. Glad this is the LAST and FINAL chemo and once I get back up to speed (there is NO speed happening today!) I won't get drenched back down again.
And then there is Vitamin D. I asked again this last time at the oncologist if they ever ran that blood test I had requested at the advice of the dietitian. She found the results from back in May. In a normal range of 25-80, my level was 27. So, on the very low end. Granted, this was before I started my daily-if-possible routine of absorbing some sunlight, so I don't know my levels now. I've recently read many articles that have found the cause of mysterious and strange symptoms to be a Vitamin D deficiency (there was an article in today's Pioneer Press, by the way). We are at a disadvantage here in this northern state of MN - at least if you are a "winter wimpy" like I am - 15 minutes of head/hand/leg exposure between October and March is pretty much not going to happen! Supplements?
I really feel these health priorities couldn't be more important - don't let anything stand between you and good health choices - exercise, healthy food choices, purified water, vitamin levels, meditation, BREATHE. Reduce stress and make life changes when necessary to maintain balance. It's not easy - I "chose" some warm molten chocolate cake, vanilla ice cream, & hot fudge tonight at Applebee's for Mike's 40th (he just loves when they sing & clap!! NOT!). An okay choice just for today - guilt isn't good either. And please don't let anyone try to instill guilt in you for making these positive choices for your life, maybe just because they might not be in their list of priorities. I let many of these just get away from me before this life-changing event known as cancer came into my life. With all I've learned, there is really no going back.
Yesterday I finished reading "The Shack" by William P. Young, as was recommended by our pastor. There were many good "learnings" in this novel. One is that we are not truly "free" when we keep trying to do things in our own human strength - without God/Jesus/Holy Spirit nothing can really be accomplished. With Him, ALL things are possible! Even life circumstances can be very different when we realize we don't have to try to understand how or why everything has happened - we just need to trust - in ALL things. This is huge for me. I was constantly saying, "Yes, but what about...?" Rather than just resting in Him and trusting fully. I'm sure this will be an on-going lesson, but I'm glad it's a path I've started walking along, and I'm very happy I'm not walking it alone. If we say "God is good, all the time!" then we must believe this.
Another quote I read is, "If anything is important, than everything is important."
Oh, and the mortality rate for humans is 100%, just in case you forgot. Everyone will eventually die and there is nothing we can do about that - just live the very best we can while we are alive! And we are alive every day that we have breath. Bernie Siegel's books share an abundance of good information and reminders.
Got a great email today, too: "When God leads you to the edge of the cliff, trust Him fully and let go, only 1 of 2 things will happen, either He'll catch you when you fall, or He'll teach you how to fly! God is going to shift things around for you today and let things work in your favor. God closes doors no man can open & God opens doors no man can close. Have a blessed day and remember to be a blessing...(thanks, Kim!)
I hope I have been a blessing to someone today - I know many of you have been a blessing to me! I apologize if this post was like a winding mountain road today, but sometimes I just have to go along for the ride, even when I feel like I might go careening off the edge! I appreciate each and every one of you and your positive thoughts, emails, cards, prayers. Remember that you are wrapped in love at all times and that God is especially fond of YOU! (Another great quote from The Shack.)
And then there is Vitamin D. I asked again this last time at the oncologist if they ever ran that blood test I had requested at the advice of the dietitian. She found the results from back in May. In a normal range of 25-80, my level was 27. So, on the very low end. Granted, this was before I started my daily-if-possible routine of absorbing some sunlight, so I don't know my levels now. I've recently read many articles that have found the cause of mysterious and strange symptoms to be a Vitamin D deficiency (there was an article in today's Pioneer Press, by the way). We are at a disadvantage here in this northern state of MN - at least if you are a "winter wimpy" like I am - 15 minutes of head/hand/leg exposure between October and March is pretty much not going to happen! Supplements?
I really feel these health priorities couldn't be more important - don't let anything stand between you and good health choices - exercise, healthy food choices, purified water, vitamin levels, meditation, BREATHE. Reduce stress and make life changes when necessary to maintain balance. It's not easy - I "chose" some warm molten chocolate cake, vanilla ice cream, & hot fudge tonight at Applebee's for Mike's 40th (he just loves when they sing & clap!! NOT!). An okay choice just for today - guilt isn't good either. And please don't let anyone try to instill guilt in you for making these positive choices for your life, maybe just because they might not be in their list of priorities. I let many of these just get away from me before this life-changing event known as cancer came into my life. With all I've learned, there is really no going back.
Yesterday I finished reading "The Shack" by William P. Young, as was recommended by our pastor. There were many good "learnings" in this novel. One is that we are not truly "free" when we keep trying to do things in our own human strength - without God/Jesus/Holy Spirit nothing can really be accomplished. With Him, ALL things are possible! Even life circumstances can be very different when we realize we don't have to try to understand how or why everything has happened - we just need to trust - in ALL things. This is huge for me. I was constantly saying, "Yes, but what about...?" Rather than just resting in Him and trusting fully. I'm sure this will be an on-going lesson, but I'm glad it's a path I've started walking along, and I'm very happy I'm not walking it alone. If we say "God is good, all the time!" then we must believe this.
Another quote I read is, "If anything is important, than everything is important."
Oh, and the mortality rate for humans is 100%, just in case you forgot. Everyone will eventually die and there is nothing we can do about that - just live the very best we can while we are alive! And we are alive every day that we have breath. Bernie Siegel's books share an abundance of good information and reminders.
Got a great email today, too: "When God leads you to the edge of the cliff, trust Him fully and let go, only 1 of 2 things will happen, either He'll catch you when you fall, or He'll teach you how to fly! God is going to shift things around for you today and let things work in your favor. God closes doors no man can open & God opens doors no man can close. Have a blessed day and remember to be a blessing...(thanks, Kim!)
I hope I have been a blessing to someone today - I know many of you have been a blessing to me! I apologize if this post was like a winding mountain road today, but sometimes I just have to go along for the ride, even when I feel like I might go careening off the edge! I appreciate each and every one of you and your positive thoughts, emails, cards, prayers. Remember that you are wrapped in love at all times and that God is especially fond of YOU! (Another great quote from The Shack.)
Friday, July 18, 2008
6 out of 6!
Chemotherapy number 6 out of 6 is complete! Yeah! Once the side effects have come & gone, it will be time to celebrate! Sonja & I did get a nice Dunn Bros Ice Crema drink yesterday, so that started it off. My counts were good - thanks to all for your specific prayers! I am working on 3 and 4 hours of sleep for the last two nights, so please forgive any nonsensical ramblings...
And....it appears I'm starting to have a tiny bit of baby fuzzy hair growing! The Nurse Practitioner even rubbed my head! So, that's good. Now, to determine what texture and color (better not be gray!) I'm going to get. Hopefully it won't decide to fall out one last time....
My next step is to research some good radiation creams for that stage of treatment. I have several in mind, so I feel better about the upcoming radiation. I anticipate less interruptive side effects, such as the foggy chemo brain, lack of taste buds, super dry mouth, and steroid crashes resulting in major fatigue.
I've found several good cookbooks, with some suggestions from a neighbor. This weekend my sister is joining me again to hopefully cook up something for the week. The Best Light Recipe cookbook by Cook's Illustrated has a ton a great cooking information describing how they made really delicious recipes lighter without compromising taste or texture. I think we'll give a couple of those a whirl (okay, she does most of the work & I mostly sit back!).
I also wanted to note that Mike's 40th birthday is next Tuesday, the 22nd. I'm afraid we won't be throwing a big party this year, for a variety of reasons (some very obvious!). Maybe we'll have a party for his 41st....what a young pup!
Alec completed Safety Camp yesterday, and I did make it to his graduation ceremony. Passed on the great looking cake, though. He learned a lot and had some fun! He starts his baseball tournaments this evening, which will continue throughout the weekend (for awhile anyway!). I'll probably miss most of those games, unfortunately.
A prayer request. Our long-time day care provider, Chris, found out early this week that her sweet little 3 month old grandson passed away from SIDS. Little Austin was born to her son, David, and his wife, Megan, on April 8th. This entire family could certainly use prayers during this extremely difficult and tragic time.
We so, so, so appreciate all the help that you all have been offering and providing! It's really nice when the boys can be off having fun elsewhere without worrying about me sitting in a chair not being their "normal" mom. We're hoping to plan a little "caregiver" get together once the radiation is past. I'm thinking a little Cossetta Eventi Mostaccioli Con Ricotta on the deck! :O) As always, we cherish your prayers and positive thoughts! This is the day the Lord has made, let us rejoice and be glad in it! Have a blessed weekend!
And....it appears I'm starting to have a tiny bit of baby fuzzy hair growing! The Nurse Practitioner even rubbed my head! So, that's good. Now, to determine what texture and color (better not be gray!) I'm going to get. Hopefully it won't decide to fall out one last time....
My next step is to research some good radiation creams for that stage of treatment. I have several in mind, so I feel better about the upcoming radiation. I anticipate less interruptive side effects, such as the foggy chemo brain, lack of taste buds, super dry mouth, and steroid crashes resulting in major fatigue.
I've found several good cookbooks, with some suggestions from a neighbor. This weekend my sister is joining me again to hopefully cook up something for the week. The Best Light Recipe cookbook by Cook's Illustrated has a ton a great cooking information describing how they made really delicious recipes lighter without compromising taste or texture. I think we'll give a couple of those a whirl (okay, she does most of the work & I mostly sit back!).
I also wanted to note that Mike's 40th birthday is next Tuesday, the 22nd. I'm afraid we won't be throwing a big party this year, for a variety of reasons (some very obvious!). Maybe we'll have a party for his 41st....what a young pup!
Alec completed Safety Camp yesterday, and I did make it to his graduation ceremony. Passed on the great looking cake, though. He learned a lot and had some fun! He starts his baseball tournaments this evening, which will continue throughout the weekend (for awhile anyway!). I'll probably miss most of those games, unfortunately.
A prayer request. Our long-time day care provider, Chris, found out early this week that her sweet little 3 month old grandson passed away from SIDS. Little Austin was born to her son, David, and his wife, Megan, on April 8th. This entire family could certainly use prayers during this extremely difficult and tragic time.
We so, so, so appreciate all the help that you all have been offering and providing! It's really nice when the boys can be off having fun elsewhere without worrying about me sitting in a chair not being their "normal" mom. We're hoping to plan a little "caregiver" get together once the radiation is past. I'm thinking a little Cossetta Eventi Mostaccioli Con Ricotta on the deck! :O) As always, we cherish your prayers and positive thoughts! This is the day the Lord has made, let us rejoice and be glad in it! Have a blessed weekend!
Saturday, July 12, 2008
Almost there....
Sorry so long since my last posting. I hope everyone had a nice 4th of July. I came in the house early from our neighbors' annual party & watched a Christmas in July movie. I did watch the fireworks from inside.
Only 5 more days until my FINAL chemotherapy treatment! Number 5 really was exhausting. I again took extra steroids to ward off any itch/hive problem. They really caused some major fatigue and "foggy" brain - for virtually the entire next week! I didn't work too much during that time; I could barely speak coherently on the phone! And it resulted in me having that puffy "bulldog" bumpy cheek appearance, which was fairly disheartening whenever I looked in the mirror. It has finally subsided....I just might reduce those steroids myself this next time...Oh, and the hot flashes & night sweats are no picnic either (unless it's a picnic in the blazing hot sun!). Those may or may not be permanent...we can "treat" them once I'm finished with the chemo treatments...do I feel old???
I also had my initial appointment with Dr. Bellairs, the Radiation Oncologist, this last Thursday. First we (Sonja & I) met with the nurse, Kim, who was just wonderful & explained things - even flipped through a little photo album to show me what to expect. After discussing options, we are going with the "Canadian Protocol" which involves daily radiation treatments for 3 weeks and one day, rather than daily for 6 weeks (I get the weekends off either way). Each dose will be about 25% higher than if using the traditional protocol, but she anticipates fairly similar side effects, which will most likely consist of fatigue and a "sunburn" in the treatment area. Both the doctor and the nurse cautioned that the fatigue will build up over a period of time, and then it will also require a similar period of time to gain my energy back (we're talking weeks on both ends). She said I'm starting at a "deficit" coming off of chemotherapy and it's own brand of fatigue. In any case, my first "dry run" day is August 4th, and then, assuming I don't have to miss any because of the flu or anything, my final one is 16 treatments later on August 26th. There is an end in sight! The oncologist anticipates I'll be able to work half days or maybe a little more during radiation. I also had a CT scan and got 3 tattoos! These will help ensure the machine is lined up correctly. I asked if that's how it felt to get a regular tattoo - if so, I'm not ever getting one! That would hurt! Ouch! :O)
Yesterday was the 2nd annual Cottage Grove Relay for Life. My mom & step dad were up, Mike's mom, sister, and niece came over, and my good friend, Coreen, joined me for the caregiver lap right after the survivor lap. They really do honor the survivors at these events. It's just strange to think I'll be a survivor every year, not just this year. No wonder these events grow & grow every year. There were people that have been survivors from 3 months to 51 years! There seemed to be a good turn out and many teams had games & items for sale, and of course the Silent Auction was in action. They did, unfortunately, have to shut the whole thing down around 8:30 or so because of the impending nasty weather conditions. So, no luminarias lit around the track this year. I would love to be more involved next year and organize a team to walk and raise $ to fight cancer....so be thinking of joining me!! The more the merrier! The good news is that it's just across the street from our home (assuming it will be in the same location) and we wouldn't even have to use the good old Biffys!
This last Wednesday, I had 3 high school girlfriends come up to visit and take me and another good long time friend, Jane, to the Plymouth Playhouse to see "The Church Basement Ladies II: A Second Helping." We enjoyed dinner at the Green Mill first, and then had many good laughs. It was funny how very reminiscent the set was to the basement of the rural Iowa church I grew up in! Right down to that tall kitchen stool and the Wonder bread bags to cover the leaky boots in the winter (set in 1969-1970). Very fun! Thanks Anita, Pam, and Tammy! :O)
On this same day, Mike took and passed his final national EMT exam the first time through! Now he's official, and life can hopefully get a little bit back to normal, without as much studying for exams. Way to go!
Today was Kevin's baseball tournament, so we watched his game at 11:00. His team lost, so they are done for the season. Alec's tourney is next weekend, but I doubt I'll be feeling perky enough to make it to those games. Alec is also going to attend a local Safety Camp for 3 days this week, which sounds like it includes many great learning activities.
It seems like I'm getting busier and busier and not necessarily following all my healing routines like I should be. I'm hoping/planning to get back at that this week. Daily devotions, exercise, tea (I'm doing okay with that!), eating healthy, inspirational reading and music. I have to start planning how I'll accomplish this once I get back to the office (not sure exactly when yet). I need to keep using the reverse osmosis filtered water for drinking & for daily tea etc.. And I'll need to keep daily exercise in the mix as well. Some things to think about...
I will end for now and promise to post again soon! I want to thank everyone for your continued prayers and positive thoughts and helping hands and generous hearts! We've had so many wonderful helpful gifts in so many ways and I am so humbled and thankful. This could easily have been a nightmare experience without all of you - I pray blessings to each one of you!
Only 5 more days until my FINAL chemotherapy treatment! Number 5 really was exhausting. I again took extra steroids to ward off any itch/hive problem. They really caused some major fatigue and "foggy" brain - for virtually the entire next week! I didn't work too much during that time; I could barely speak coherently on the phone! And it resulted in me having that puffy "bulldog" bumpy cheek appearance, which was fairly disheartening whenever I looked in the mirror. It has finally subsided....I just might reduce those steroids myself this next time...Oh, and the hot flashes & night sweats are no picnic either (unless it's a picnic in the blazing hot sun!). Those may or may not be permanent...we can "treat" them once I'm finished with the chemo treatments...do I feel old???
I also had my initial appointment with Dr. Bellairs, the Radiation Oncologist, this last Thursday. First we (Sonja & I) met with the nurse, Kim, who was just wonderful & explained things - even flipped through a little photo album to show me what to expect. After discussing options, we are going with the "Canadian Protocol" which involves daily radiation treatments for 3 weeks and one day, rather than daily for 6 weeks (I get the weekends off either way). Each dose will be about 25% higher than if using the traditional protocol, but she anticipates fairly similar side effects, which will most likely consist of fatigue and a "sunburn" in the treatment area. Both the doctor and the nurse cautioned that the fatigue will build up over a period of time, and then it will also require a similar period of time to gain my energy back (we're talking weeks on both ends). She said I'm starting at a "deficit" coming off of chemotherapy and it's own brand of fatigue. In any case, my first "dry run" day is August 4th, and then, assuming I don't have to miss any because of the flu or anything, my final one is 16 treatments later on August 26th. There is an end in sight! The oncologist anticipates I'll be able to work half days or maybe a little more during radiation. I also had a CT scan and got 3 tattoos! These will help ensure the machine is lined up correctly. I asked if that's how it felt to get a regular tattoo - if so, I'm not ever getting one! That would hurt! Ouch! :O)
Yesterday was the 2nd annual Cottage Grove Relay for Life. My mom & step dad were up, Mike's mom, sister, and niece came over, and my good friend, Coreen, joined me for the caregiver lap right after the survivor lap. They really do honor the survivors at these events. It's just strange to think I'll be a survivor every year, not just this year. No wonder these events grow & grow every year. There were people that have been survivors from 3 months to 51 years! There seemed to be a good turn out and many teams had games & items for sale, and of course the Silent Auction was in action. They did, unfortunately, have to shut the whole thing down around 8:30 or so because of the impending nasty weather conditions. So, no luminarias lit around the track this year. I would love to be more involved next year and organize a team to walk and raise $ to fight cancer....so be thinking of joining me!! The more the merrier! The good news is that it's just across the street from our home (assuming it will be in the same location) and we wouldn't even have to use the good old Biffys!
This last Wednesday, I had 3 high school girlfriends come up to visit and take me and another good long time friend, Jane, to the Plymouth Playhouse to see "The Church Basement Ladies II: A Second Helping." We enjoyed dinner at the Green Mill first, and then had many good laughs. It was funny how very reminiscent the set was to the basement of the rural Iowa church I grew up in! Right down to that tall kitchen stool and the Wonder bread bags to cover the leaky boots in the winter (set in 1969-1970). Very fun! Thanks Anita, Pam, and Tammy! :O)
On this same day, Mike took and passed his final national EMT exam the first time through! Now he's official, and life can hopefully get a little bit back to normal, without as much studying for exams. Way to go!
Today was Kevin's baseball tournament, so we watched his game at 11:00. His team lost, so they are done for the season. Alec's tourney is next weekend, but I doubt I'll be feeling perky enough to make it to those games. Alec is also going to attend a local Safety Camp for 3 days this week, which sounds like it includes many great learning activities.
It seems like I'm getting busier and busier and not necessarily following all my healing routines like I should be. I'm hoping/planning to get back at that this week. Daily devotions, exercise, tea (I'm doing okay with that!), eating healthy, inspirational reading and music. I have to start planning how I'll accomplish this once I get back to the office (not sure exactly when yet). I need to keep using the reverse osmosis filtered water for drinking & for daily tea etc.. And I'll need to keep daily exercise in the mix as well. Some things to think about...
I will end for now and promise to post again soon! I want to thank everyone for your continued prayers and positive thoughts and helping hands and generous hearts! We've had so many wonderful helpful gifts in so many ways and I am so humbled and thankful. This could easily have been a nightmare experience without all of you - I pray blessings to each one of you!
Wednesday, June 18, 2008
Something new
Almost two weeks after chemo #4 and I am feeling remarkably well these last few days. There were some "new" side effects from the extra steroids, which were given to prevent those itchy hives. Hey, no hives! Some crazy lack of sleep however, and then a monstrous fatigue last week. It seems to have leveled off, for now, anyway.
I have tried some "new" things, which I think is very helpful. Just as it's beneficial to schedule some pleasant activities to look forward to.
* As recommended by my chiropractor, I took a warm bath scented with Lavender essential oil virtually daily for the first week after the last treatment. This really did seem to be calming, and possibly helped prevent the hives as well.
* Got a massage yesterday here in town! Always a treat, and also suggested as a complimentary therapy. If anyone would like a very reasonable massage, contact Barbara @ K.eep I.n T.ouch massage therapy @ 651-769-9116. Her rates are just $40 for an hour massage. And, you can't beat the first-time special of TWO one hour massages for $40!
* Joined my 3M work group for a lunch at the Olive Garden yesterday. It's good to know that the Venetian Apricot Chicken is delicious (comes with broccoli and asparagus - what could be more perfect?) and so I barely missed my beloved pasta. Anyone that's known me for long understands that I should have been Italian! My son, Kevin, and I could pretty much live on a good daily dose of noodles!
* Tonight I took my very first Yoga class! It was just 30 minutes, and was great! This was from a gift certificate that I won from a drawing at the chiropractor's office. Again, this is a local woman who added a fitness studio to her home and is providing classes and personal training through her Real Fit Workout Studio. You can check it out at www.r-fit.com. Yoga is also a recommended complimentary therapy, especially for breathing & relaxation techniques.
* Drove through Starbucks for a nice hot cup of green tea one day last week after dropping the boys at daycare. The woman before me in line paid for my beverage & added a message to have a great day! Gotta love random acts of kindness. Something small & unexpected can make a huge difference in someone's day! :O)
We enjoyed the Strawberry Fest parade last Saturday here in Cottage Grove. The boys went on some rides while I checked out the business expo booths. Later, we watched Mike and the fire fighters demo an extraction from a car using the Jaws of Life. Absorbed lots of Vitamin D that day (and was wiped out after all that!).
I'll be having a little "getaway" at my sister's this weekend, which will be fun. Next week Alec will participate in the Starbase program that was offered to children of 3M employees. He's big into Science and technology and computers and is very much looking forward to this 4-day class.
I am scheduled for next Thursday, June 26th, at 10:40 for the next round of chemo. Until then, I will keep up my "healing" activities. The Christian radio station is on pretty much all day for positive messages and encouragement. I've read some more uplifting books (such as Chicken Soup for the Survivor's Soul). And I've spent time researching new healthy recipes online (could become addicting! Now I just need to cook some up...).
It's also so encouraging to hear from you through emails, etc. I can't say enough how much we appreciate every prayer and positive thought coming our way! If you would, please send some on down to the hurting people in my home state, Iowa, that are dealing with such devastation from the unprecedented flooding. The prayers of the righteous are powerful and effective!
I have tried some "new" things, which I think is very helpful. Just as it's beneficial to schedule some pleasant activities to look forward to.
* As recommended by my chiropractor, I took a warm bath scented with Lavender essential oil virtually daily for the first week after the last treatment. This really did seem to be calming, and possibly helped prevent the hives as well.
* Got a massage yesterday here in town! Always a treat, and also suggested as a complimentary therapy. If anyone would like a very reasonable massage, contact Barbara @ K.eep I.n T.ouch massage therapy @ 651-769-9116. Her rates are just $40 for an hour massage. And, you can't beat the first-time special of TWO one hour massages for $40!
* Joined my 3M work group for a lunch at the Olive Garden yesterday. It's good to know that the Venetian Apricot Chicken is delicious (comes with broccoli and asparagus - what could be more perfect?) and so I barely missed my beloved pasta. Anyone that's known me for long understands that I should have been Italian! My son, Kevin, and I could pretty much live on a good daily dose of noodles!
* Tonight I took my very first Yoga class! It was just 30 minutes, and was great! This was from a gift certificate that I won from a drawing at the chiropractor's office. Again, this is a local woman who added a fitness studio to her home and is providing classes and personal training through her Real Fit Workout Studio. You can check it out at www.r-fit.com. Yoga is also a recommended complimentary therapy, especially for breathing & relaxation techniques.
* Drove through Starbucks for a nice hot cup of green tea one day last week after dropping the boys at daycare. The woman before me in line paid for my beverage & added a message to have a great day! Gotta love random acts of kindness. Something small & unexpected can make a huge difference in someone's day! :O)
We enjoyed the Strawberry Fest parade last Saturday here in Cottage Grove. The boys went on some rides while I checked out the business expo booths. Later, we watched Mike and the fire fighters demo an extraction from a car using the Jaws of Life. Absorbed lots of Vitamin D that day (and was wiped out after all that!).
I'll be having a little "getaway" at my sister's this weekend, which will be fun. Next week Alec will participate in the Starbase program that was offered to children of 3M employees. He's big into Science and technology and computers and is very much looking forward to this 4-day class.
I am scheduled for next Thursday, June 26th, at 10:40 for the next round of chemo. Until then, I will keep up my "healing" activities. The Christian radio station is on pretty much all day for positive messages and encouragement. I've read some more uplifting books (such as Chicken Soup for the Survivor's Soul). And I've spent time researching new healthy recipes online (could become addicting! Now I just need to cook some up...).
It's also so encouraging to hear from you through emails, etc. I can't say enough how much we appreciate every prayer and positive thought coming our way! If you would, please send some on down to the hurting people in my home state, Iowa, that are dealing with such devastation from the unprecedented flooding. The prayers of the righteous are powerful and effective!
Tuesday, June 3, 2008
Take a Lap
Things are moving right along. This Thursday, the 5th, I have chemo #4 out of 6 at 10:15 (for you prayer warriors!). Please pray for good counts, so there will be no delay. Also, I had some "extra" delayed-onset side effects after the last treatment (including hives and tremendous itchiness), so please add that concern to your prayers, if you would.
Speaking of moving, I registered for the 2nd annual Cottage Grove Relay for Life which will be taking place on Friday-Saturday July 11-12th. http://main.acsevents.org/site/TR?fr_id=7153&pg=entry I have signed up for the Survivor Lap. Their definition of a survivor is anyone that has ever heard the words "you have cancer." I spoke with the survivor chairperson last night, and she explained that after the opening ceremonies at 6:00 p.m. on Friday, the survivors all take the first lap (there are approximately 3o of us right now). Then, for the second lap, they ask all the caregivers to join the survivors for another one (or more) and then the teams all join in. So, I'm inviting anyone who has said a prayer, sent a card, brought a meal, helped with the kids, sent a positive thought, etc. to feel free to join me on a 2nd lap around the track. I feel you are all "my" caregivers and I so appreciate you and everything you do to make this journey easier for me! There is no need to register; she said the more the merrier, bring it on! This takes place at the CG Jr High, basically across the street from our home. Last year we looked across at dusk and were amazed at all the glowing luminaries circling the entire track. It is beautiful, but it also represents so many people that have been affected by this disease.
This morning during my daily devotions and bible reading, I was touched by the following sentiment: "God will bless us with light as we follow Christ; we can shine even in the rain." I feel so blessed to find His light even as I walk through this rain shower (some days, a downpour?).
And there is always Hope! One of my favorite verses, that helps keep that "attitude of gratitude" going is simply "Thanks be to God for His indescribable gift!" 2Cor 9:15 He has offered us the free gift of salvation and eternal life through Christ. That is the foundation of my hope every day!
Speaking of moving, I registered for the 2nd annual Cottage Grove Relay for Life which will be taking place on Friday-Saturday July 11-12th. http://main.acsevents.org/site/TR?fr_id=7153&pg=entry I have signed up for the Survivor Lap. Their definition of a survivor is anyone that has ever heard the words "you have cancer." I spoke with the survivor chairperson last night, and she explained that after the opening ceremonies at 6:00 p.m. on Friday, the survivors all take the first lap (there are approximately 3o of us right now). Then, for the second lap, they ask all the caregivers to join the survivors for another one (or more) and then the teams all join in. So, I'm inviting anyone who has said a prayer, sent a card, brought a meal, helped with the kids, sent a positive thought, etc. to feel free to join me on a 2nd lap around the track. I feel you are all "my" caregivers and I so appreciate you and everything you do to make this journey easier for me! There is no need to register; she said the more the merrier, bring it on! This takes place at the CG Jr High, basically across the street from our home. Last year we looked across at dusk and were amazed at all the glowing luminaries circling the entire track. It is beautiful, but it also represents so many people that have been affected by this disease.
This morning during my daily devotions and bible reading, I was touched by the following sentiment: "God will bless us with light as we follow Christ; we can shine even in the rain." I feel so blessed to find His light even as I walk through this rain shower (some days, a downpour?).
And there is always Hope! One of my favorite verses, that helps keep that "attitude of gratitude" going is simply "Thanks be to God for His indescribable gift!" 2Cor 9:15 He has offered us the free gift of salvation and eternal life through Christ. That is the foundation of my hope every day!
Thursday, May 22, 2008
Halfway!
Three down, three to go. Let's call it the homeward stretch. Or the downhill tumble? Some observations...
*It seems that each chemo knocks me down a little bit more and takes a little bit longer to bounce back. I experienced some "chemo brain" this time that I didn't after the first two treatments. It was an exhausting weekend - and I basically didn't do anything except read a good book. The chemo brain and significant fatigue may make working a little bit more challenging.
*Speaking of working, it's such a blessing that I am able to work from home during this treatment/recovery period. I've been working about 3-4 hours daily on almost all of my "good" days, which has been pretty nice (except when I lose my wireless or 3M network connections!). These hours may actually have to be reduced as I move on down this path. I'm finding less time to just rest and heal.
* Exercise is "medicine" just like food. I'm so glad there is Leslie Sansone to walk with at home! I tried about 10 minutes of a Denise Austin kickboxing video (garage sale bargain) and that was about it before I collapsed (as did Kevin!). And it was for beginners! I schedule in the exercise just like any medication per the dietitian and common sense for good health now and in the future.
* Doing something non-cancer is very therapeutic. Even just a Saturday morning garage sale or lunch at Subway and fabulous Dunn Bros Ice Crema coffee drink with friends (I guess that was a little specific!). I "save up" for those sweet treats, because they, of course, don't fuel the body, although often they fuel the soul! The friends & conversation & laughter certainly do!
* Moms cry when they watch kids performing....even when it's not their own kids! Tonight was Alec's grand performance of "The Wizard of Oz" at school. He did wonderfully! I'm one of those that is usually choked up as they play the opening music. I'm so proud of him and all the hard work he did rehearsing and memorizing lines. It's a truly astounding production for a 3rd grade class! His teacher is an amazing director and all around fantastic teacher. Oh, they also dedicated the shows to the two moms in the class fighting breast cancer right now. The entire cast wore pink ribbons in our honor, as did we. Okay, add that to reasons to get choked up...
* Mother's Day was very nice and I am again so blessed to have my little boys. It's so incredible that God chose me to raise them here on earth. I hope all the mothers had a special day! I had several people walking "for" me at the Mall of America Race for the Cure, which means a lot to me. I now have a new cookbook, scarf, and hat to remember their efforts. Very nice!
* Gardening is miraculous! Our veggie garden went in late this year (Mike just planted it today, in fact). When you really think about putting a dried up seed in some dirt and just adding water and sunshine and here comes something beautiful or good to eat, it's nothing short of a miracle. We did emphasize green things in the planting choices this year, plus always tomatoes. I've already pulled some rhubarb and made some experimental muffins. Too bad rhubarb always requires a fair amount of sugar to sweeten it up. It is a favorite of mine, now to just get those boys to like it....
* Sitting at a baseball game in the wind tends to turn a longer wig into a mass of tangles. Yikes!
* People that have known you for 10+ years may not recognize you with new "hair" and glasses!
* People tend to feel better themselves when they do something to help someone else. I'm hoping to get involved (at least a little) in the Cottage Grove Relay for Life in July (a non-chemo treatment weekend). It's very close to our house & I think I could take a lap or two. Hopefully with a friend or two! Also, I'm looking at some community service type projects for the Cub Scout den. The options to help others are endless.
* I didn't mean to cause anyone to worry by waiting a long time to update! I'll try to keep this a little more current in the future. It was more "busyness" than sickness that created the delay.
* One can never have too many in her support network. I am, again, so very thankful for each of you and your own individual talents and gifts. You bring so much to my life. I cherish your prayers and positive thoughts more than you can imagine. Have a wonderful Memorial Day weekend and keep in mind all those who have sacrificed for our freedom.
*It seems that each chemo knocks me down a little bit more and takes a little bit longer to bounce back. I experienced some "chemo brain" this time that I didn't after the first two treatments. It was an exhausting weekend - and I basically didn't do anything except read a good book. The chemo brain and significant fatigue may make working a little bit more challenging.
*Speaking of working, it's such a blessing that I am able to work from home during this treatment/recovery period. I've been working about 3-4 hours daily on almost all of my "good" days, which has been pretty nice (except when I lose my wireless or 3M network connections!). These hours may actually have to be reduced as I move on down this path. I'm finding less time to just rest and heal.
* Exercise is "medicine" just like food. I'm so glad there is Leslie Sansone to walk with at home! I tried about 10 minutes of a Denise Austin kickboxing video (garage sale bargain) and that was about it before I collapsed (as did Kevin!). And it was for beginners! I schedule in the exercise just like any medication per the dietitian and common sense for good health now and in the future.
* Doing something non-cancer is very therapeutic. Even just a Saturday morning garage sale or lunch at Subway and fabulous Dunn Bros Ice Crema coffee drink with friends (I guess that was a little specific!). I "save up" for those sweet treats, because they, of course, don't fuel the body, although often they fuel the soul! The friends & conversation & laughter certainly do!
* Moms cry when they watch kids performing....even when it's not their own kids! Tonight was Alec's grand performance of "The Wizard of Oz" at school. He did wonderfully! I'm one of those that is usually choked up as they play the opening music. I'm so proud of him and all the hard work he did rehearsing and memorizing lines. It's a truly astounding production for a 3rd grade class! His teacher is an amazing director and all around fantastic teacher. Oh, they also dedicated the shows to the two moms in the class fighting breast cancer right now. The entire cast wore pink ribbons in our honor, as did we. Okay, add that to reasons to get choked up...
* Mother's Day was very nice and I am again so blessed to have my little boys. It's so incredible that God chose me to raise them here on earth. I hope all the mothers had a special day! I had several people walking "for" me at the Mall of America Race for the Cure, which means a lot to me. I now have a new cookbook, scarf, and hat to remember their efforts. Very nice!
* Gardening is miraculous! Our veggie garden went in late this year (Mike just planted it today, in fact). When you really think about putting a dried up seed in some dirt and just adding water and sunshine and here comes something beautiful or good to eat, it's nothing short of a miracle. We did emphasize green things in the planting choices this year, plus always tomatoes. I've already pulled some rhubarb and made some experimental muffins. Too bad rhubarb always requires a fair amount of sugar to sweeten it up. It is a favorite of mine, now to just get those boys to like it....
* Sitting at a baseball game in the wind tends to turn a longer wig into a mass of tangles. Yikes!
* People that have known you for 10+ years may not recognize you with new "hair" and glasses!
* People tend to feel better themselves when they do something to help someone else. I'm hoping to get involved (at least a little) in the Cottage Grove Relay for Life in July (a non-chemo treatment weekend). It's very close to our house & I think I could take a lap or two. Hopefully with a friend or two! Also, I'm looking at some community service type projects for the Cub Scout den. The options to help others are endless.
* I didn't mean to cause anyone to worry by waiting a long time to update! I'll try to keep this a little more current in the future. It was more "busyness" than sickness that created the delay.
* One can never have too many in her support network. I am, again, so very thankful for each of you and your own individual talents and gifts. You bring so much to my life. I cherish your prayers and positive thoughts more than you can imagine. Have a wonderful Memorial Day weekend and keep in mind all those who have sacrificed for our freedom.
Monday, April 28, 2008
Two down, four to go
As of last Thursday, I am 1/3 complete with the chemotherapy treatments. The treatment itself, again, went fine. I met with the nurse practitioner, Judy, this time. We reviewed my counts, etc., which were all good (white blood cell counts were actually high - as expected -because of the Nuelasta shot). She said the "bad news" was that I could have the treatment. No kidding! I wrestled through a tough weekend again. I think we managed a few of the side effects better than the first round, but I still was exhausted and "down" for the count. I'm certainly not 100% today, but gaining some ground.
I also visited A Fitting Place again, with Jenny and Sonja, this time, to remove the "chemo hair" following my rainy day chemo treatment. I was feeling very unprepared, except for the mountainous handfuls of long hair coming out of my head every moment, which helped me determine that I was making the right choice. It was honestly not nearly as traumatic as I expected. It's weird to get used to that sight in the mirror, however, of a closely shaved head (not as nice & fuzzy as the boys' because of bald patches!). Definitely tougher for the boys, especially Alec. He really doesn't want to see me without something on my head. Fortunately, I do happen to have more hair accessories of various kinds than ever before in my life, so I am fairly well prepared. "Normal" and "reality" just keep changing. I just need to keep up and make it the best it can be for me and them.
I had tickets to the Castings Crowns concert on Saturday night with friends, but just did not feel up to it (even just walking around in ~30 degree weather did not sound appealing). So I had to just praise God here at home, instead!
Today was a day of much needed rest. After visiting the chiropractor for my weekly adjustment and dropping the boys at school, I came home, did my 2-mile walk (exercise is medicine, too) with not as much energy as usual, but hey, cancer hates aerobics. I finished up a couple of books that I had previously started, which dealt a lot with "human moments" and learning to make the most of every minute of the fleeting time we have on this earth. This whole thing has been a huge wake-up call and I need to make sure I don't slip back over to the "just endure and walk the treadmill" track again.
I've also been listening to some CDs that offer powerful healing & restorative action. Some are selections gathered for positive reinforcement (thanks, Linda!), and others are relaxing, healing, or guided imagery and affirmation. Music has always ministered to my soul, and this challenging time is no exception. I've even been playing Alec's "We're Off to See the Wizard" piano music when I get a chance - his 3rd grade performance of "Oz" will be May 22nd. Very fun and exciting!
I hope that each of you knows what a tremendous blessing you are in my life. I apologize if I have not made sure you know what you mean to me and my family. We had much greatly appreciated help this weekend from friends and family and we are very thankful for everything. And tonight, Mike's cousin's family took the boys for supper and on to Alec's baseball practice (Mike still has EMT classes every Monday & Thursday evening). It gives me time to rest and re-energize, which are both crucial for quick and complete recovery. I thank God for each of you and for your generous and caring hearts.
I also visited A Fitting Place again, with Jenny and Sonja, this time, to remove the "chemo hair" following my rainy day chemo treatment. I was feeling very unprepared, except for the mountainous handfuls of long hair coming out of my head every moment, which helped me determine that I was making the right choice. It was honestly not nearly as traumatic as I expected. It's weird to get used to that sight in the mirror, however, of a closely shaved head (not as nice & fuzzy as the boys' because of bald patches!). Definitely tougher for the boys, especially Alec. He really doesn't want to see me without something on my head. Fortunately, I do happen to have more hair accessories of various kinds than ever before in my life, so I am fairly well prepared. "Normal" and "reality" just keep changing. I just need to keep up and make it the best it can be for me and them.
I had tickets to the Castings Crowns concert on Saturday night with friends, but just did not feel up to it (even just walking around in ~30 degree weather did not sound appealing). So I had to just praise God here at home, instead!
Today was a day of much needed rest. After visiting the chiropractor for my weekly adjustment and dropping the boys at school, I came home, did my 2-mile walk (exercise is medicine, too) with not as much energy as usual, but hey, cancer hates aerobics. I finished up a couple of books that I had previously started, which dealt a lot with "human moments" and learning to make the most of every minute of the fleeting time we have on this earth. This whole thing has been a huge wake-up call and I need to make sure I don't slip back over to the "just endure and walk the treadmill" track again.
I've also been listening to some CDs that offer powerful healing & restorative action. Some are selections gathered for positive reinforcement (thanks, Linda!), and others are relaxing, healing, or guided imagery and affirmation. Music has always ministered to my soul, and this challenging time is no exception. I've even been playing Alec's "We're Off to See the Wizard" piano music when I get a chance - his 3rd grade performance of "Oz" will be May 22nd. Very fun and exciting!
I hope that each of you knows what a tremendous blessing you are in my life. I apologize if I have not made sure you know what you mean to me and my family. We had much greatly appreciated help this weekend from friends and family and we are very thankful for everything. And tonight, Mike's cousin's family took the boys for supper and on to Alec's baseball practice (Mike still has EMT classes every Monday & Thursday evening). It gives me time to rest and re-energize, which are both crucial for quick and complete recovery. I thank God for each of you and for your generous and caring hearts.
Tuesday, April 22, 2008
Right on schedule
It's been awhile since I updated....so here's the current scoop.
I went to work for 2 half days last Monday & Tuesday (14th & 15th). I was fairly surprised to find this just wiped me out! I have since been approved to work from home (up to 4 hours daily, per Dr. Hartung, probably 3 days a week or so). I purchased a Wireless Router yesterday & just need to get that set up today & I should be ready to roll. Working from home will be really nice, particularly to avoid "extra" germs while I have a suppressed immune system, not to mention conserving the energy required just to get "ready" in the morning & drive in. Need to keep those blood counts up & the chemo treatments on schedule. Let's keep the end in sight!
I wound up at the oncologist's office last Monday after work for a very "itchy" hand (near the site where the chemo IV was). Now I have steroid cream to apply there, and it is much improved. Again, if this got out of hand, it could delay the chemo. So many interesting side effects....
I also had an eye exam Friday, partially to explain this other side effect. Just once, I saw a "halo" light in both eyes that actually distorted the magazine (healthy recipes!) I was reading. The explanation was similar to a migraine (I've never had one). The eye doctor said that some people see the halo but don't get the headache. He said he was not surprised that I'd have this resulting from the chemo drugs. He said I did the right thing by just sitting & closing my eyes for 20-30 minutes. Otherwise, my vision had not changed. I was due for some glasses, though, so ordered up some more "stylish" ones. I made sure the woman assisting me knew I wanted to look "good" even without hair and eyebrows! Everyone there (Mead Optometry) was very helpful.
The most disturbing thing right now is that my hair is falling out hand over fist. It is right on schedule, 2-1/2 weeks after the first treatment. I knew this would bother me, and it really does! It bothers Alec a lot, too. I'm going Thursday after chemo, with my sister, to have the remaining "chemo hair" removed and the wig styled. I showed my boys the wigs last night, and even tried one on for them. They decided I didn't look like me and "where are your curls?"! Alec thought I looked like Nancy Drew! So, I think I will be getting one more - a curlier one so it won't be as "shocking" to them every time they look at me. There are many websites with good hair pieces, at significantly lesser prices (www.bestwigoutlet.com for example).
I did meet friends for lunch last Thursday and Friday which was really nice. Heard about some skin care ingredients that are not so great, so spent probably 8 hours on-line researching some of that. I think I'm driving myself crazy with that, since there are virtually no products that don't contain at least something questionable. I'll need bifocals just to read the tiny but massive lists of ingredients on every product! However, the database "rating" many of these has "data gaps" of up to 90%+ in some cases, so they aren't sure either!
I'm scheduled for chemo this Thursday the 24th @ 10:45. My sister again will accompany me and we'll find a good light movie to watch. My friend, Coreen, has agreed to pick up some lunch for us & deliver it! We're thinking that new Noodles linguine with asparagus - maybe double the asparagus! Healthy & delicious greens! So, please pray that my counts will be good and that I won't be delayed.
Oh, we had the pleasant surprise of a phone call on Saturday evening from my cousin, Diane, from Cedar Falls. She & her family were in Woodbury for their son's soccer tourney and had some time on Sunday. We met them at our church and enjoyed a short visit before & after the service. Very nice!
I want to continue to thank all of you for your on-going prayers and support of our family. You are showing the love of God every day in your actions and we are so grateful. We are also praying for several (too many) others that are fighting this cancer battle. One of my dear friends had surgery yesterday. One other friend lost his battle last week, and his family needs lots of prayers and support as well. We pray for God's continued comfort and peace and strength for all of these, His children.
I went to work for 2 half days last Monday & Tuesday (14th & 15th). I was fairly surprised to find this just wiped me out! I have since been approved to work from home (up to 4 hours daily, per Dr. Hartung, probably 3 days a week or so). I purchased a Wireless Router yesterday & just need to get that set up today & I should be ready to roll. Working from home will be really nice, particularly to avoid "extra" germs while I have a suppressed immune system, not to mention conserving the energy required just to get "ready" in the morning & drive in. Need to keep those blood counts up & the chemo treatments on schedule. Let's keep the end in sight!
I wound up at the oncologist's office last Monday after work for a very "itchy" hand (near the site where the chemo IV was). Now I have steroid cream to apply there, and it is much improved. Again, if this got out of hand, it could delay the chemo. So many interesting side effects....
I also had an eye exam Friday, partially to explain this other side effect. Just once, I saw a "halo" light in both eyes that actually distorted the magazine (healthy recipes!) I was reading. The explanation was similar to a migraine (I've never had one). The eye doctor said that some people see the halo but don't get the headache. He said he was not surprised that I'd have this resulting from the chemo drugs. He said I did the right thing by just sitting & closing my eyes for 20-30 minutes. Otherwise, my vision had not changed. I was due for some glasses, though, so ordered up some more "stylish" ones. I made sure the woman assisting me knew I wanted to look "good" even without hair and eyebrows! Everyone there (Mead Optometry) was very helpful.
The most disturbing thing right now is that my hair is falling out hand over fist. It is right on schedule, 2-1/2 weeks after the first treatment. I knew this would bother me, and it really does! It bothers Alec a lot, too. I'm going Thursday after chemo, with my sister, to have the remaining "chemo hair" removed and the wig styled. I showed my boys the wigs last night, and even tried one on for them. They decided I didn't look like me and "where are your curls?"! Alec thought I looked like Nancy Drew! So, I think I will be getting one more - a curlier one so it won't be as "shocking" to them every time they look at me. There are many websites with good hair pieces, at significantly lesser prices (www.bestwigoutlet.com for example).
I did meet friends for lunch last Thursday and Friday which was really nice. Heard about some skin care ingredients that are not so great, so spent probably 8 hours on-line researching some of that. I think I'm driving myself crazy with that, since there are virtually no products that don't contain at least something questionable. I'll need bifocals just to read the tiny but massive lists of ingredients on every product! However, the database "rating" many of these has "data gaps" of up to 90%+ in some cases, so they aren't sure either!
I'm scheduled for chemo this Thursday the 24th @ 10:45. My sister again will accompany me and we'll find a good light movie to watch. My friend, Coreen, has agreed to pick up some lunch for us & deliver it! We're thinking that new Noodles linguine with asparagus - maybe double the asparagus! Healthy & delicious greens! So, please pray that my counts will be good and that I won't be delayed.
Oh, we had the pleasant surprise of a phone call on Saturday evening from my cousin, Diane, from Cedar Falls. She & her family were in Woodbury for their son's soccer tourney and had some time on Sunday. We met them at our church and enjoyed a short visit before & after the service. Very nice!
I want to continue to thank all of you for your on-going prayers and support of our family. You are showing the love of God every day in your actions and we are so grateful. We are also praying for several (too many) others that are fighting this cancer battle. One of my dear friends had surgery yesterday. One other friend lost his battle last week, and his family needs lots of prayers and support as well. We pray for God's continued comfort and peace and strength for all of these, His children.
Thursday, April 10, 2008
One week later
It's been a busy time since my 1st treatment. Turns out that days 3 & 4 are really pretty much the pits even though day 1 went very well. I haven't felt that lousy in a long time, maybe ever. I've determined a few things I'll change (such as not worrying about eating "healthy" for a couple days & eating "bland/comfort" instead) the next round. Today is easily my "best" day since the chemo.
However, besides they things I couldn't do, things I could & did do include:
* Saved up my energy & managed to attend Triple Espresso with my family on Sunday afternoon - I'm sure the laughter promoted good healing endorphins
* Dropped my boys at school daily - takes more effort than I thought some days!
* Attended the Look Good Feel Better class on Tuesday morning with my sister. It's amazing how positive all these women are, no matter the circumstances they are facing (head on!)
* Went to the dentist Wed. morning - just a cleaning, but my mouth is still not quite back to normal (whatever that is). Tip for dry-mouths - Biotene toothpaste - I had never heard of it
* This morning I went to the Wig Room at the American Cancer Society in Mendota Heights to choose a free wig and several handmade scarves/hats. This is a great program - if you know anyone that needs one, just call & schedule a one-on-one appointment.
My family and I are very appreciative of all of your support. For example, today a large (3 feet?) stuffed smiling daisy was delivered by UPS (thanks Westergren's!). It makes me smile just to look at it. :O) And two friends visited with a Subway lunch & balloons. There is so much to be thankful for every day! When I think of all of you I remember "This is the day the Lord has made, let us rejoice and be glad in it!" You give us so many reasons to rejoice no matter the circumstances. God bless! And enjoy the snow (NOT)!
However, besides they things I couldn't do, things I could & did do include:
* Saved up my energy & managed to attend Triple Espresso with my family on Sunday afternoon - I'm sure the laughter promoted good healing endorphins
* Dropped my boys at school daily - takes more effort than I thought some days!
* Attended the Look Good Feel Better class on Tuesday morning with my sister. It's amazing how positive all these women are, no matter the circumstances they are facing (head on!)
* Went to the dentist Wed. morning - just a cleaning, but my mouth is still not quite back to normal (whatever that is). Tip for dry-mouths - Biotene toothpaste - I had never heard of it
* This morning I went to the Wig Room at the American Cancer Society in Mendota Heights to choose a free wig and several handmade scarves/hats. This is a great program - if you know anyone that needs one, just call & schedule a one-on-one appointment.
My family and I are very appreciative of all of your support. For example, today a large (3 feet?) stuffed smiling daisy was delivered by UPS (thanks Westergren's!). It makes me smile just to look at it. :O) And two friends visited with a Subway lunch & balloons. There is so much to be thankful for every day! When I think of all of you I remember "This is the day the Lord has made, let us rejoice and be glad in it!" You give us so many reasons to rejoice no matter the circumstances. God bless! And enjoy the snow (NOT)!
Friday, April 4, 2008
One down, 5 to go...
One round of chemotherapy down, 5 to go. My sister, Sonja, came with me for the first treatment yesterday at 8:20 a.m. and helped me get all my "stuff" arranged. It's invaluable to have a second set of ears for all the instructions. The treatment itself went without incident. They pumped in two bags of nausea drugs and then the two chemo drugs, one after the other, and then a shot of Neulasta to boost my white blood cell production. The nurses were very nice. All of the patients seemed pretty upbeat. It's amazing & concerning how many people are undergoing treatment for cancer - just at this one location.
We hooked up the portable DVD player and watched most of "The Princess Bride" during the infusion. It's good to have something light that includes a little laughter during this stressful time. That's one of my favorite "classic" movies. I also had a couple of fruity "Popsicles" to help prevent any mouth sores that might think about developing. The nurse, Celia, said I wasn't getting that particular drug, but I figure prevention is still a good idea! We then had to run to Target and pick up some additional Rx's, etc.
My long-time friend, Jane, and her kids came over to help me out last evening while Mike was taking a test for his EMT class. It was good to chat and relax a little. I was definitely ready for bed by about 8:00 though.
I did my 2-mile indoor walk this morning and am sort of waiting to see what side effects hit when. All the suggestions are to "get ahead" of them and take care of them ASAP to reduce the impact. They are saying I will experience the hair loss before my next treatment in 3 weeks. I'm really not looking forward to that one.
My mom and stepdad are coming up today to help out. Also, we are all, kids included, going to a Triple Espresso matinee on Sunday (I'm praying I feel good!). That is the best laughter medicine ever.
I think one major reason the actual treatment went so well yesterday was the wonderful prayer coverage I had. I thank every one of you who lifted your prayers to God during that time. Even my blood pressure was very good, so it was helping my stress level as well. I am so very thankful for the amazing outpouring of support for me and my family! I wish you all a restful and peaceful weekend. God bless you!
We hooked up the portable DVD player and watched most of "The Princess Bride" during the infusion. It's good to have something light that includes a little laughter during this stressful time. That's one of my favorite "classic" movies. I also had a couple of fruity "Popsicles" to help prevent any mouth sores that might think about developing. The nurse, Celia, said I wasn't getting that particular drug, but I figure prevention is still a good idea! We then had to run to Target and pick up some additional Rx's, etc.
My long-time friend, Jane, and her kids came over to help me out last evening while Mike was taking a test for his EMT class. It was good to chat and relax a little. I was definitely ready for bed by about 8:00 though.
I did my 2-mile indoor walk this morning and am sort of waiting to see what side effects hit when. All the suggestions are to "get ahead" of them and take care of them ASAP to reduce the impact. They are saying I will experience the hair loss before my next treatment in 3 weeks. I'm really not looking forward to that one.
My mom and stepdad are coming up today to help out. Also, we are all, kids included, going to a Triple Espresso matinee on Sunday (I'm praying I feel good!). That is the best laughter medicine ever.
I think one major reason the actual treatment went so well yesterday was the wonderful prayer coverage I had. I thank every one of you who lifted your prayers to God during that time. Even my blood pressure was very good, so it was helping my stress level as well. I am so very thankful for the amazing outpouring of support for me and my family! I wish you all a restful and peaceful weekend. God bless you!
Monday, March 31, 2008
Less is more, well, better, anyway
I met with Dr. Hartung on this very snowy & wintry morning. Turns out I actually "squeaked" into the criteria for Stage 1 rather than Stage 2A as previously determined. This was because there was no remaining residual disease in the re-excision pathology report. We also reached a decision on the course of chemotherapy (pending insurance approval). It will be just two of the chemotherapy drugs (just like one side of the clinical trial, but not as part of the clinical trial), with a treatment every 3 weeks for 6 cycles. I'm scheduled for the chemotherapy class this Wednesday afternoon, with my first treatment to be Thursday. My last treatment will be July 17th if all goes as planned. There are several other drugs that will be part of this overall plan, including steroids and Neulasta (for white blood cells counts). She said to beware of the steroids, they may keep me awake & I'll be up cleaning the house all night. Yikes! Anyway, it's good to have a "plan" and start moving forward. There will still be radiation following the chemo. Either once a day for about 6 weeks or twice a day for about 3 weeks - TBD.
I'm also planning to look into some additional natural health care to help with healing & side effect minimization and emotional & psychological health. They offer quite a few through Woodwinds. I've also had several other "connections" which I have yet to check out. This learning curve is enormous & the days are flying by!
This afternoon, I had a call from a sweet local lady that is part of an organization called Chrysalides (sent by my good friend, Coreen). She then stopped by with a little gift bag for me - full of 9 (!) hand-sewn cancer hats - the soft knit fabric kind. And a tiny fuzzy white pillow just for hugging when I need to. She said they've found that the child in us comes out during times like these. The pillow has a little tag that reads: Know that you are not alone What an encouragement!
One last thing...if you are looking for an easy & delicious salad - this is my latest - a bag of baby Romaine topped with lots of fresh sliced strawberries and then sprinkled with Trader Joe's raspberry dressing. I think I'll add some toasted nuts next time for protein. Healthy eating doesn't have to be painful - I'm planning to eat healthier pretty much from now on, so making it tasty is essential.
Please keep the prayers coming....I think this may be the bumpiest part of the road coming up. We so appreciate your thoughts & prayers! Take care & take time to stop & smell the roses.
I'm also planning to look into some additional natural health care to help with healing & side effect minimization and emotional & psychological health. They offer quite a few through Woodwinds. I've also had several other "connections" which I have yet to check out. This learning curve is enormous & the days are flying by!
This afternoon, I had a call from a sweet local lady that is part of an organization called Chrysalides (sent by my good friend, Coreen). She then stopped by with a little gift bag for me - full of 9 (!) hand-sewn cancer hats - the soft knit fabric kind. And a tiny fuzzy white pillow just for hugging when I need to. She said they've found that the child in us comes out during times like these. The pillow has a little tag that reads: Know that you are not alone What an encouragement!
One last thing...if you are looking for an easy & delicious salad - this is my latest - a bag of baby Romaine topped with lots of fresh sliced strawberries and then sprinkled with Trader Joe's raspberry dressing. I think I'll add some toasted nuts next time for protein. Healthy eating doesn't have to be painful - I'm planning to eat healthier pretty much from now on, so making it tasty is essential.
Please keep the prayers coming....I think this may be the bumpiest part of the road coming up. We so appreciate your thoughts & prayers! Take care & take time to stop & smell the roses.
Friday, March 28, 2008
Negative is Positve
Yes, there is a new vocabulary, in which "negative" is positive. I met with Dr. Koeplin this morning and had all good news. There are no more positive margins. So, the surgery part of the treatment is complete, and we move on to the systemic portion, chemotherapy. I'm scheduled to meet with Dr. Hartung on Monday morning and we'll make some decision regarding standard treatment vs clinical trial, etc. It's likely I'll have the chemotherapy class on Tuesday afternoon and possibly start treatments as early as next week. All to be determined.
I'll meet back with Dr. Koeplin after chemo and radiation are done. I asked about future "screenings" since the cancer was not detected at all on a mammogram, even when we knew where the lump was. It may need to be an MRI in the future. Again, all to be determined.
I'll meet back with Dr. Koeplin after chemo and radiation are done. I asked about future "screenings" since the cancer was not detected at all on a mammogram, even when we knew where the lump was. It may need to be an MRI in the future. Again, all to be determined.
Jenny and I had a good day on Tuesday at "A Fitting Place" in Hastings and I did purchase a wig (thank you to my work group for the VISA gift card!). The proprietor was excellent and explained what to expect, etc. She will remove the "chemo" hair when it starts to fall out and then do any additional styling to the wig. The sad part (okay, one of several) is that the wig is actually cuter than my own hair! I would recommend this place to anyone experiencing medical hair loss that would like personal and sensitive assistance.
It looks like a beautiful sunny day to sit outside and absorb some Vitamin D - which I have learned is very essential in preventing cancer. Just need to leave off the sunscreen for 15 minutes or so. Also, as a little nutrition tip, it's a good idea to eat a Brazil nut daily - you know, those big ones left in the bottom of the can of mixed nuts - they contain selenium which is an important nutrient. Oh, and of course, garlic is right up there as a top cancer preventing agent.
Exercise is very important as well, so I suppose I should go walk a mile or two this afternoon. I did the 3-mile walk video yesterday, with limited weights, but haven't found time yet today.
Today has been a good day, but I've had a few less good ones this week. I'm sure I should continue to expect some amount of roller coaster ride on this journey. I do always have an underlying hope, no matter the circumstances. This is from my faith in God and because of the constant support and prayers of so many of you. Thank you for continuing on with me and my family!
I hope everyone has a great and peaceful weekend. Our kids are on Spring Break next week, so they are looking forward to no school for awhile. :O)
Monday, March 24, 2008
Breast Cancer 3 Day 60 mile Twin Cities Walk
I recently found out that our friend and family child care provider, Christine Heist, is going to be participating in the Twin Cities 3 Day 60 mile walk to support Breast Cancer Research in September. As many of you know, this is a huge undertaking, requiring a lot of physical training and fundraising. I am attaching the link here to her Personal Page if anyone is interested in supporting her in this very worthy cause. Go Chris! The ultimate goal of all this research is a world without breast cancer! I would be all for that!
http://08.the3day.org/site/TR/Walk/TwinCitiesEvent?px=1792545&pg=personal&fr_id=1191&et=6_C3VxmqrPigF7-trTnY9w..&s_tafId=6351
No word yet on the pathology report.....time to go take a rest....
http://08.the3day.org/site/TR/Walk/TwinCitiesEvent?px=1792545&pg=personal&fr_id=1191&et=6_C3VxmqrPigF7-trTnY9w..&s_tafId=6351
No word yet on the pathology report.....time to go take a rest....
Friday, March 21, 2008
In and Out...
It's Good Friday, and the 2nd day of Spring (although you wouldn't know it looking out the window). My family is all looking forward to celebrating the Resurrection of Christ this Sunday! And, I think I'll feel well enough to participate.
My surgery was at 7:00 yesterday morning, and I was home by 9:30. Dr. Koeplin said the surgery went well and that we should have the pathology report by Monday. He said not to be surprised if they don't find any cancer - that doesn't mean it was missed, it would mean the "positive margin" was such a small area. I am also scheduled with him for a follow-up next Friday, and then with Dr. Hartung on Monday the 31st. It sounds like I might have my chemotherapy class that next day (April Fool's Day). So, the ball will continue to roll.
I am scheduled to visit "A Fitting Place" in Hastings on Tuesday for a hair replacement (?) consultation. I may try other places as well, depending on the outcome of this visit. Many new experiences.
I rested all day yesterday and was looking very pale. I really didn't take any pain meds, but just controlled the pain with cold packs. I did manage to read a book and listen to lots of healing music CDs my sister brought over. My sister and mom cooked up some recipes to eat and/or freeze. Right now there is a big crock pot of Cindy's spaghetti sauce simmering.....does it ever smell wonderful! It's nice to be cozy inside while the snow is flying outside. I'm feeling quite a bit better and stronger today, but obviously still need to take it slow.
Interesting Surgical Note: A surgeon is required to mark the "spot" where the surgery is to be performed with a permanent marker on your body (his/her initials) prior to surgery. He said if you ever see one coming with a ballpoint pen, direct them to a sharpie! This is a good thing, as I'm guessing it was implemented to avoid those unfortunate accidents of removing the wrong thing.
Once again, thank you to everyone for your thoughts and prayers for our family. I don't know how people go through things like this without a "support" group and a faith in God. He is walking along beside me every step of the way, as I get better every day!
I wish you all a very blessed and happy Easter!
My surgery was at 7:00 yesterday morning, and I was home by 9:30. Dr. Koeplin said the surgery went well and that we should have the pathology report by Monday. He said not to be surprised if they don't find any cancer - that doesn't mean it was missed, it would mean the "positive margin" was such a small area. I am also scheduled with him for a follow-up next Friday, and then with Dr. Hartung on Monday the 31st. It sounds like I might have my chemotherapy class that next day (April Fool's Day). So, the ball will continue to roll.
I am scheduled to visit "A Fitting Place" in Hastings on Tuesday for a hair replacement (?) consultation. I may try other places as well, depending on the outcome of this visit. Many new experiences.
I rested all day yesterday and was looking very pale. I really didn't take any pain meds, but just controlled the pain with cold packs. I did manage to read a book and listen to lots of healing music CDs my sister brought over. My sister and mom cooked up some recipes to eat and/or freeze. Right now there is a big crock pot of Cindy's spaghetti sauce simmering.....does it ever smell wonderful! It's nice to be cozy inside while the snow is flying outside. I'm feeling quite a bit better and stronger today, but obviously still need to take it slow.
Interesting Surgical Note: A surgeon is required to mark the "spot" where the surgery is to be performed with a permanent marker on your body (his/her initials) prior to surgery. He said if you ever see one coming with a ballpoint pen, direct them to a sharpie! This is a good thing, as I'm guessing it was implemented to avoid those unfortunate accidents of removing the wrong thing.
Once again, thank you to everyone for your thoughts and prayers for our family. I don't know how people go through things like this without a "support" group and a faith in God. He is walking along beside me every step of the way, as I get better every day!
I wish you all a very blessed and happy Easter!
Monday, March 17, 2008
Moving toward better health...
Thank goodness for the Internet - it certainly saves a lot of effort when one becomes a full-time researcher. On this snowy St. Patrick's Day I spent virtually all day researching nutrition, wigs, and clinical trials, plus sending and responding to a few emails.
I met with Heidi Ganzer, registered dietitian with MOHPA, on Friday morning. She was a wealth of good information and my head is still spinning trying to figure out how to apply it all! It will require some fairly significant life style changes in terms of shopping, cooking, and eating, but all that will bring better health now and down the road (to me and my family). I won't go into all the details, but her first two comments were 1) you should never eat (choke down) something that just doesn't taste good to you, no matter how healthy it is (goodbye yogurt!) and 2) never eat something bigger than your head (a Chipolte burrito was an example). Along with many specifics (like greens and beans), the recommendations were many that we should all be doing anyway, such as daily exercise, lots of water, 9-13 servings of fruits & veggies daily, lots of good, lean protein. I'm thinking Trader Joe's is going to become a new favorite. I stopped there right after my appointment and picked up some steel cut oatmeal and flax seed, among other things.
I did hear from the oncologists' office today that my ER/PR/HER2 results remained negative after additional pathology testing. I had been praying much about this and I was very happy to hear the HER2 results. When that is positive, I understand that is an unfavorable prognostic factor.
The USPS was so kind as to deliver my Amazon.com order of 2 Leslie Sansone "Walking" exercise DVDs today. So, I paused my research and tried out a mile of each one (they go up to 3 miles each). I think these will work great for getting in the 30-90 minutes of "activity" on most days, as was recommended. It felt good to "move" more, with just some soreness yet on my left side. I'll have to start that healing process over again after surgery on Thursday, but I'll be able to get a couple of days in.
I still have some phone calls to make regarding wigs, but I do have a few leads on good ones. I also need to check on insurance to see if they cover certain expenses that may occur in the clinical trial. And I'm waiting to hear from my 3M short-term disability case worker to make sure we have all the paperwork ready that we need. I have a lot a resources and assistance, which does make this a little bit easier.
I'm so thankful for all of you. It's great to be able to pick up the phone and bounce new (sometimes scary) information and questions and ideas off someone I can trust. Your prayers continue to be so important and such a blessing to me and my family. I've learned about several others facing and fighting different cancers in the last few days. Nothing is more essential than the prayers and positive and encouraging thoughts and words.
I met with Heidi Ganzer, registered dietitian with MOHPA, on Friday morning. She was a wealth of good information and my head is still spinning trying to figure out how to apply it all! It will require some fairly significant life style changes in terms of shopping, cooking, and eating, but all that will bring better health now and down the road (to me and my family). I won't go into all the details, but her first two comments were 1) you should never eat (choke down) something that just doesn't taste good to you, no matter how healthy it is (goodbye yogurt!) and 2) never eat something bigger than your head (a Chipolte burrito was an example). Along with many specifics (like greens and beans), the recommendations were many that we should all be doing anyway, such as daily exercise, lots of water, 9-13 servings of fruits & veggies daily, lots of good, lean protein. I'm thinking Trader Joe's is going to become a new favorite. I stopped there right after my appointment and picked up some steel cut oatmeal and flax seed, among other things.
I did hear from the oncologists' office today that my ER/PR/HER2 results remained negative after additional pathology testing. I had been praying much about this and I was very happy to hear the HER2 results. When that is positive, I understand that is an unfavorable prognostic factor.
The USPS was so kind as to deliver my Amazon.com order of 2 Leslie Sansone "Walking" exercise DVDs today. So, I paused my research and tried out a mile of each one (they go up to 3 miles each). I think these will work great for getting in the 30-90 minutes of "activity" on most days, as was recommended. It felt good to "move" more, with just some soreness yet on my left side. I'll have to start that healing process over again after surgery on Thursday, but I'll be able to get a couple of days in.
I still have some phone calls to make regarding wigs, but I do have a few leads on good ones. I also need to check on insurance to see if they cover certain expenses that may occur in the clinical trial. And I'm waiting to hear from my 3M short-term disability case worker to make sure we have all the paperwork ready that we need. I have a lot a resources and assistance, which does make this a little bit easier.
I'm so thankful for all of you. It's great to be able to pick up the phone and bounce new (sometimes scary) information and questions and ideas off someone I can trust. Your prayers continue to be so important and such a blessing to me and my family. I've learned about several others facing and fighting different cancers in the last few days. Nothing is more essential than the prayers and positive and encouraging thoughts and words.
Thursday, March 13, 2008
Rise and shine...
Just a quick update. My out-patient surgery is scheduled for next Thursday, March 20th, at 7:00 a.m. I'll be arriving at Woodwinds at 5:45! (Yes, I know certain people are already at work at that time!)
I also got a call back from the American Cancer Society today. I'm registered for a "Look Good, Feel Better" class in Woodbury in early April. Professionals teach you how to use make-up, etc., to help keep you looking good and therefore feeling better & more confident throughout treatment (especially loss of eyelashes, eyebrows, etc.).
This is just one of an abundance of resources that I never knew existed. I'll take advantage of anything that is positive and healing that will make this journey less arduous.
Please keep me and my family and the surgical team in your prayers on the 20th. It will be the first day of Spring. A day of new beginnings! Thank you!
I also got a call back from the American Cancer Society today. I'm registered for a "Look Good, Feel Better" class in Woodbury in early April. Professionals teach you how to use make-up, etc., to help keep you looking good and therefore feeling better & more confident throughout treatment (especially loss of eyelashes, eyebrows, etc.).
This is just one of an abundance of resources that I never knew existed. I'll take advantage of anything that is positive and healing that will make this journey less arduous.
Please keep me and my family and the surgical team in your prayers on the 20th. It will be the first day of Spring. A day of new beginnings! Thank you!
Wednesday, March 12, 2008
Onward....and still waiting.....
So, I have some new information today, but "everything" is still not quite clarified.
Yesterday, I met with Dr. Hartung to discuss the additional surgery, and she felt it was reasonable to go forward with an additional excision, with the knowledge that if there are any more positive margins, it would then be a mastectomy. She realized the pathology report was missing some important information regarding Estrogen/Progesterone/Her-Neu positive or negative. She'll be calling me after speaking with the pathologist. These are necessary for determining the type and course of chemotherapy. With all else that was determined, this cancer is considered early stage 2, aka stage 2A, primarily because of the size.
We also talked about the options for chemo, including a possible clinical trial. I'd have a 50/50 chance of getting either of the two treatments - one that would have a side effect profile ~5% worse than the standard treatment, and one that would be ~5% better than standard. I'll have to study the paperwork they send me and make a decision. However, can't make that decision without the missing information from above.... Chemo will start about 2 weeks following the final surgery.
Side effects will include, of course, hair loss. She gave me the name of a place in Hastings, "A Fitting Place," which is a full service place for wigs, etc. I'm still looking at others, too. She looked at me and said, "It will take a long time to grow back hair like that." Then she looked at Mike and said, "It would take 3-4 months to grow hair like that." Hmmm....his style is not my style!
Also had blood work and a chest X-ray to establish a baseline.
I scheduled an appointment with their nutritionist for this Friday to ensure I'm eating the best possible things to maintain the greatest health. Low Glycemic Index foods are my friends! Maybe not always to the taste buds, but at least to the healthy cells in my body. Organic is also becoming "standard" around here.
This morning I met with Dr. Koeplin. He is very confidant we can get that remaining positive margin removed with an additional excision and that this can be an outpatient procedure, which will go over well with my sons - they did NOT like that I was in the hospital overnight. He said it looked like my other incisions were healing just fine (okay, how about not using deodorant under one arm - you are all glad I haven't been in to work! Sorry if that was TMI!). I always feel better after meeting with him.
The scheduler will hopefully call this afternoon to schedule the surgery for next week. I'd like it ASAP! I imagine I'll need a pre-op physical again. This is seriously a full time job, trying to get a handle on all this.
I did read a wonderful book "There's No Place Like Hope: A Guide to Fighting Cancer in Mind-Sized Bites" (Amazon.com is also my friend!) It was very encouraging and made me feel I'm not "crazy" for having certain fears or questions or feelings. I did so much "cancer" yesterday, however, that I didn't sleep too well, so I'm going to try and do some "Wendee the person" things today instead.
Again, I can't say enough how I appreciate the positive thoughts, good wishes, prayers, cards, gifts, and offers of help you are sending our way! The support is amazing and humbling. I truly believe I'll be a changed person, in many ways, when this journey is complete. God does keep placing the right people/books/information, etc. in my path right when I need them. For this I am so grateful.
Yesterday, I met with Dr. Hartung to discuss the additional surgery, and she felt it was reasonable to go forward with an additional excision, with the knowledge that if there are any more positive margins, it would then be a mastectomy. She realized the pathology report was missing some important information regarding Estrogen/Progesterone/Her-Neu positive or negative. She'll be calling me after speaking with the pathologist. These are necessary for determining the type and course of chemotherapy. With all else that was determined, this cancer is considered early stage 2, aka stage 2A, primarily because of the size.
We also talked about the options for chemo, including a possible clinical trial. I'd have a 50/50 chance of getting either of the two treatments - one that would have a side effect profile ~5% worse than the standard treatment, and one that would be ~5% better than standard. I'll have to study the paperwork they send me and make a decision. However, can't make that decision without the missing information from above.... Chemo will start about 2 weeks following the final surgery.
Side effects will include, of course, hair loss. She gave me the name of a place in Hastings, "A Fitting Place," which is a full service place for wigs, etc. I'm still looking at others, too. She looked at me and said, "It will take a long time to grow back hair like that." Then she looked at Mike and said, "It would take 3-4 months to grow hair like that." Hmmm....his style is not my style!
Also had blood work and a chest X-ray to establish a baseline.
I scheduled an appointment with their nutritionist for this Friday to ensure I'm eating the best possible things to maintain the greatest health. Low Glycemic Index foods are my friends! Maybe not always to the taste buds, but at least to the healthy cells in my body. Organic is also becoming "standard" around here.
This morning I met with Dr. Koeplin. He is very confidant we can get that remaining positive margin removed with an additional excision and that this can be an outpatient procedure, which will go over well with my sons - they did NOT like that I was in the hospital overnight. He said it looked like my other incisions were healing just fine (okay, how about not using deodorant under one arm - you are all glad I haven't been in to work! Sorry if that was TMI!). I always feel better after meeting with him.
The scheduler will hopefully call this afternoon to schedule the surgery for next week. I'd like it ASAP! I imagine I'll need a pre-op physical again. This is seriously a full time job, trying to get a handle on all this.
I did read a wonderful book "There's No Place Like Hope: A Guide to Fighting Cancer in Mind-Sized Bites" (Amazon.com is also my friend!) It was very encouraging and made me feel I'm not "crazy" for having certain fears or questions or feelings. I did so much "cancer" yesterday, however, that I didn't sleep too well, so I'm going to try and do some "Wendee the person" things today instead.
Again, I can't say enough how I appreciate the positive thoughts, good wishes, prayers, cards, gifts, and offers of help you are sending our way! The support is amazing and humbling. I truly believe I'll be a changed person, in many ways, when this journey is complete. God does keep placing the right people/books/information, etc. in my path right when I need them. For this I am so grateful.
Thursday, March 6, 2008
And then a step back....
Today I am a week post (first) surgery and things are starting to heal and are becoming a little less sore. You may have noticed I said "first" surgery. Unfortunately, I got a call this afternoon from Dr. Koeplin, the surgeon, telling me that the pathology report shows that there is still an area with "positive" margins that will require additional surgery. My appointment with him was hence rescheduled for next Wednesday (12th) following my appointment with Dr. Hartung, oncologist, on Tuesday. They will determine the extent of the surgery required - an additional excision, or a mastectomy. The good news is that even after more "sophisticated" tests, the lymph nodes remain negative. He recommended that I remain off work until after these next appointments.
I also went in for an extra (modified) adjustment from my chiropractor this morning (keep the immune system working at its maximum) and got a nutritional "lesson" as well, which will be helpful in maintaining the best health possible during treatment and recovery. A few take aways include that broccoli is a big winner, along with other dark greens, water is the beverage of choice, and there are also a fair number of things to avoid when possible (sugar, etc.).
As someone wisely mentioned to me, I'm on a very steep learning curve right now, so I'm trying learn and understand what I need to know without getting information overload. One thing that every new piece of information does seem to contain is that a positive mental/emotional attitude is perhaps more essential than any other physical factor. That is one area that I am "feeding" as much as possible with inspirational books and music while I'm at home. The knowledge of every one's positive thoughts and prayers is a huge boost as well. I can't tell you how much you are appreciated and constantly touching my heart. Know that you are contributing to my positive attitude and therefore my healing.
Thank you so much for continuing to pray.
I also went in for an extra (modified) adjustment from my chiropractor this morning (keep the immune system working at its maximum) and got a nutritional "lesson" as well, which will be helpful in maintaining the best health possible during treatment and recovery. A few take aways include that broccoli is a big winner, along with other dark greens, water is the beverage of choice, and there are also a fair number of things to avoid when possible (sugar, etc.).
As someone wisely mentioned to me, I'm on a very steep learning curve right now, so I'm trying learn and understand what I need to know without getting information overload. One thing that every new piece of information does seem to contain is that a positive mental/emotional attitude is perhaps more essential than any other physical factor. That is one area that I am "feeding" as much as possible with inspirational books and music while I'm at home. The knowledge of every one's positive thoughts and prayers is a huge boost as well. I can't tell you how much you are appreciated and constantly touching my heart. Know that you are contributing to my positive attitude and therefore my healing.
Thank you so much for continuing to pray.
Friday, February 29, 2008
One step down, one step forward...
Yesterday's surgery went well. Dr. Koeplin removed the lump and the one sentinel lymph node. The lymph node contained only benign cells, so they didn't have to remove any more than just that one. That was the good news! Mike, my mom, sister, mother-in-law, and sister-in-law were all there during the surgery as a great support team. My sister, Sonja, stayed over night with me, which was extremely helpful. The spiritual support provided by all your prayers was, again, invaluable during this first scary step.
Mike brought Alec & Kevin to visit me last night as well. They were very happy to take turns snuggling beside me (on my right side!) in the hospital bed watching some TV. I think it was very reassuring to them that I was still just "Mom."
I was home by 10:00 this morning. One major step is done & overwith. Now I just keep stepping forward, one day at a time. I'm scheduled for a follow-up with the surgeon on Friday the 7th, and then the oncologist again on the 11th.
We are so thankful for your thoughts, prayers, cards, sincere offers to help our family, and notes of encouragement on this blog!
Mike brought Alec & Kevin to visit me last night as well. They were very happy to take turns snuggling beside me (on my right side!) in the hospital bed watching some TV. I think it was very reassuring to them that I was still just "Mom."
I was home by 10:00 this morning. One major step is done & overwith. Now I just keep stepping forward, one day at a time. I'm scheduled for a follow-up with the surgeon on Friday the 7th, and then the oncologist again on the 11th.
We are so thankful for your thoughts, prayers, cards, sincere offers to help our family, and notes of encouragement on this blog!
Tuesday, February 26, 2008
The first step...
The first physical step toward healing will be this Thursday, the 28th. I am scheduled for surgery at 10:00 @ Woodwinds. My sister, husband, and mother will be with me. The surgeon is going to keep me overnight for one night to allow for a better transition home.
The emotional and spiritual healing has been/is on-going with the many positive thoughts and prayers that are happening on behalf of me and my family. For this, I am so thankful.
I'm not sure how many days I will be off work for this first procedure, but I'll try to update here if possible.
We talked to the boys about this upcoming surgery for the first time tonight - no "C" word at this point. It was still very difficult and emotional, with many tears. I could see the fear in their eyes. We did our best to reassure them. We will tell them more details as the next treatment plans to in place.
Thanks to all who are praying! The prayers of the righteous are powerful and effective!
The emotional and spiritual healing has been/is on-going with the many positive thoughts and prayers that are happening on behalf of me and my family. For this, I am so thankful.
I'm not sure how many days I will be off work for this first procedure, but I'll try to update here if possible.
We talked to the boys about this upcoming surgery for the first time tonight - no "C" word at this point. It was still very difficult and emotional, with many tears. I could see the fear in their eyes. We did our best to reassure them. We will tell them more details as the next treatment plans to in place.
Thanks to all who are praying! The prayers of the righteous are powerful and effective!
Sunday, February 24, 2008
The journey begins...
Hello dear family and friends,
I've started this blog to hopefully keep everyone updated as to my health situation and specific prayer requests. This was a great recommendation from a fellow survivor (I fully intend to join those ranks!).
Timeline:
January 28th - annual exam, suspicious "fibrous" lump discovered
Februrary 1st - mammogram, showed nothing - the same as in September, ultrasound completed as well - radiologist still couldn't determine for sure
February 6th - core needle biopsy performed - should have results 48-72 hours
Feburary 12th - finally got the call (15 minutes before school conferences) with the not good news - Ductal Carcinoman In Situ - decent prognosis
February 20th - met Dr. Nicole Hartung, Oncologist, found out there was another, invasive ductal carcinoma as well - shocking news. She is very good...
February 21st - MRI to see if there were any other "missed" areas since the mammogram doesn't show anything
February 22nd - met with Dr. Michael Koeplin, surgeon. MRI results were as good as they could be, from what we started with. Plan to schedule a lumpectomy and lymp node excision (?) for next week...I am very comfortable with this surgeon - I just felt better after meeting with him - at least there is a plan. There will almost definitely be chemotherapy following the surgery, and there will absolutely be radiation after that (it's a package deal with the lumpectomy). It will be a long road.
So, here it is, Sunday evening, and I'm waiting for the surgery (my first ever) to be scheduled. As the title of this blog suggests, and as a wise friend sent in a note to me early on, every day that goes by is one day that I am closer to being healed. My two dear sons are motivation enough to press on & do whatever I need to do to facilitate that happening. And your prayers couldn't be more important and appreciated!
I've started this blog to hopefully keep everyone updated as to my health situation and specific prayer requests. This was a great recommendation from a fellow survivor (I fully intend to join those ranks!).
Timeline:
January 28th - annual exam, suspicious "fibrous" lump discovered
Februrary 1st - mammogram, showed nothing - the same as in September, ultrasound completed as well - radiologist still couldn't determine for sure
February 6th - core needle biopsy performed - should have results 48-72 hours
Feburary 12th - finally got the call (15 minutes before school conferences) with the not good news - Ductal Carcinoman In Situ - decent prognosis
February 20th - met Dr. Nicole Hartung, Oncologist, found out there was another, invasive ductal carcinoma as well - shocking news. She is very good...
February 21st - MRI to see if there were any other "missed" areas since the mammogram doesn't show anything
February 22nd - met with Dr. Michael Koeplin, surgeon. MRI results were as good as they could be, from what we started with. Plan to schedule a lumpectomy and lymp node excision (?) for next week...I am very comfortable with this surgeon - I just felt better after meeting with him - at least there is a plan. There will almost definitely be chemotherapy following the surgery, and there will absolutely be radiation after that (it's a package deal with the lumpectomy). It will be a long road.
So, here it is, Sunday evening, and I'm waiting for the surgery (my first ever) to be scheduled. As the title of this blog suggests, and as a wise friend sent in a note to me early on, every day that goes by is one day that I am closer to being healed. My two dear sons are motivation enough to press on & do whatever I need to do to facilitate that happening. And your prayers couldn't be more important and appreciated!
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